Patients Multiple sclerosis
Topic of the discussion
Posted on 1/16/19 1:55 AM
Multiple Sclerosis can be a debilitating disease and often times, those diagnosed with MS, lean on the shoulder of a loved one or a caregiver to help them with daily tasks; however, there is no one who knows better than how to properly help, care, and be there for someone with MS than a person diagnosed with the condition.
What do you feel is important for a caregiver to know?
What recommendations would you give to a caregiver?
How can one better be there emotionally and socially for one dealing with MS?
Beginning of the discussion - 1/19/19Caring for one diagnosed with MS... What Should You Know? https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/caring-for-one-diagnosed-with-ms-what-should-you-know-687
Posted on 1/19/19 6:44 PM
@Niagia83 @Bbryant81 @LynndMS @suplkr1 @siemprelucha @meek58 @Samantha @Sillysarah8466 @Paulmarji977hooo.com @Emma2190 @MS_283 @broadwaylady @Kjess_srn @copa20 @maryam20 @Ms052018 @Tjw0673 @Areid79 @padres44 @Kelcrna @Baxter @Triciarie
Posted on 1/20/19 5:32 PM
@Lee__R Hi, thanks for the tag and I will offer some input of my own. A caregiver or loved one should be understanding especially when it comes to the cognitive memory problems etc for the person with MS, because mistakes will happen and repetetion is normally a must with some re-teachings needed too. Basically patience and understanding is the most important things for a caregiver or loved one. It's also very helpful if they take part in appointments, research or anything regarding the person with MS, that way everyone can be on the same page and support will be stronger. Lastly, the other reason understanding and patience is needed for either, is because with MS there are mood swings that can mimic bi polar and depression is also worse especially if that person already has it. Everyone's different, so some may have mood swings, (like I do and depression) and some may not but still knowing this is important for the caregiver, loved one and family. Hope that answers things. ~Emma
Posted on 1/26/19 3:13 AM
I agree @Emma2190 you hit some very good points!
Patience and a deep care for wanting to understand the symptoms and difficulties the disease presents... to not only understand the physical impact but also the mental aspect; to not only be there to help with the physical parts, but also the emotional and mental part (even if it is just watching a tv show with us... it means the world, trust me).