MERRF syndrome
Forum

Current topics:

Current topics:

• - SSI disability
  I have Spina Bifida and Hydrocephalus.I've tried applying for ssi disability but not approved.Can anyone offer suggestions? Thank you
• - Applying for Supplemental Security Income (SSI)
  Hello I have Spina Bifida and Hydrocephalus.I have tried applying for SSI disability but have been denied because I have to work to support myself in the meantime.Has anyone experienced this and we're
• - Do you have a Bucket List?
  Hello everyone, You can call me movin_on. I am diagnosed with Parkinson's. For those of you who may not be familiar with this term, a Bucket List is a list of things that one has not done before bu

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - Have you had any side effects from the COVID vaccine?
  I got mine Wednesday and have had several reactions. None on injection day but the day after, sore arm, dry mouth. Next day felt fine! Day after that had chills body aches and fever, stayed in bed and
• - COVID-19 masks: Are you going to continue wearing a mask after you've had the vaccine?
  Hello everyone, I hope you're doing well. As the discussions continue on the end of the COVID-19 lockdown and social distancing measures, you may have some questions about the use of protective fa