Topic of the discussion
Posted on 3/30/19 1:54 AM
Hello everyone, since the diagnosis of lupus and suffering through the symptoms, especially that of pain and extreme fatigue, I just have difficulty doing anything after the work day or being extremely fatigued throughout the day because the pain and fatigue occupies me.
Does anyone have recommendations to help with the depression aspect you experience from lupus?
Beginning of the discussion - 4/3/19What do you do to help your depression caused by lupus? https://www.carenity.us/forum/lupus/living-with-lupus/what-do-you-do-to-help-your-depression-caused-876
Posted on 4/3/19 12:13 AM
Hey there Jasmine1092 depending on where you are in your life and your have to schedule, I try to do a few little things each day that make me feel joy. For me it is 15 minutes of working on my flowers or learning how to crochet something new. It doesn't have to be long and tedious. Take 15-1 hour to just breath. Take a spa music inspired bomb bath what ever you enjoy and take back your joy. You never know you could end up with fabulous new friendships but you have to take that first step and it may take a couple of tries to really get into what makes you happy but the journey along the way will be well worth it as you looklook your heart for those happy places.
I hope that helped and that you find your joyand renew it daily.
Posted on 4/6/19 5:25 AM
if you fatigue and tired, you should take rest and ask for help. For me, if I have fatigue and begin to think negatively, I take rest and read books which can inspire me the happiness. I also share my troubles with my loved people, they are always willing to share my troubles and help me to overcome.
Posted on 4/10/19 9:27 AM
I used to be so tired i got to where i was falling asleep while driving. so my dr. put me on adderall it was a god sent to me it also helps with depression. i also take zoloft. I have been taking this for about 18 years. i have swith drs. over the years and they still keep me on adderall they said thry were giving lupus patient adderall more because it helps. give it a try.
Posted on 4/10/19 8:26 PM
Wow I've never heard of using Adderall for Lupus. Hey Jo, I was trying to respond to you in another chat but I think I sent it to early. I have been on so many medications and am at the point that I am choosing to not take any medication unless I absolutely have to. Having this disease for so long has made me choose more natural ways to live. My quality of life was so bad with all the medication I was taking that after 2 strokes and having to fix a valve in my heart, I said no more. Because of all the narcotic medication I was on when i suffered my first stroke, the emergency room doctor said I had over dosed! My family confirm I did Not over dose and brought my medicine to the hospital and showed the doctor! Still they didn't know what happened! After my second stroke in which I was unconscious for over 36 hours and intubated again they said over dose. They had a neurologist come in and "listened" to what I was telling her. She said okay and left and came back 2 hours later and said I know what has been happening to you, you have suffered 2 strokes. 1 hemoragic and the other, on the other side of my head was non hemoragic. This was the beginning of a new kind of healing. We started weining me off alot of my medication and Istarted choosing to go a more natural route. I stopped taking the all my narcotic medication, my plaquinil as I was having issues with my eyes and really didn't want to be on it in the first place. I ended up moving and found other doctors where I live and they are wonderful. We talked about where I was with my disease and how I wanted to proceed with my care. I decided to get my medical marijuana card as it is legal in FL and am using that for pain mngt as well as CBD. I changed my eating habits and listen to my body. I'm still on valum for my seisures, but they are much better now with the CBD and Symbalta for my depression. My quality of life has changed drastically since my life changes. I am able to have many more good days than bad and am actually for the first time in a long time, am able to enjoy my time. For me, living with this disease for so long and really being a ginny pig for so long that I don't want to take any medication. I'm trying to get off of everything that I can as I want to live out the rest of my life as naturally as possible. I'm sure some of you will be shocked at what I'm doing but for me it is working. My rheumatologist is on board and for that I am grateful. I wish you well on your journey and hope to talk to you again.