Living With Lupus (SLE): Why Raising Awareness and Sharing Our Experiences Matters

Hello,

This discussion in Living with chronic pain has been moved because we think it will elicit more responses from this group: Living with lupus.

Have a great day,

Razar from the Carenity Team

Hi @mickey ,

Thank you for sharing this, Michele, and for putting so much energy into raising awareness about lupus. 💜 Hearing directly from people living with SLE can help others better understand the realities of the condition.

I’d also like to invite some of our members to share their perspectives: @Victorialove @Tracy1968 @tressagracefull @Mylife @KjMyers08 @BarbaraC @Tmeale @Smblount @Lstrachan1 @NidiaR @Scooby471973 @Purple82 @JodyLynn @Asuzena @Katholyn @Tammyday @Mstrice @Tanzerlia @cookteauna82 @djanels @Maivy28 @LupusInColor @Atica66 @Feliciamarie @Rebur122184 @Pamelajean4246 @Rochelledenise69 @cjgertner @Gcardona @Emmabrim39! @LDaley @Lisavas2566 @Caletha39 @Taniya @Viktoryalynne @Christa.J @cmmusiclover @Bijoux @Yayaya @amyrose @Heyzil @apriljaycox @Twettybird @Natassia @Marnetta @JoinerD @Debgaudy @Gilda @Kprice8529 @Rachelsara @Dodiel @Fresh.out.of.Spoons @Maryann7 @Nclady1966 @Danilola @MSlupuswarrior @Kammerenl @Bravosb @Bclack @Blueberry37 @TracyyS @Skyisthelimit32 @Henrycarlos @HairlabChicago @VeeElCee @stopthebs @giaadluca @jennyrose01 @Jdaug7961 @Hittani @kendellhaden @cse44r @Shea0317 @PattiR @Barbara918 @Jlynnw0726 @LuLupin @AmyHark72 @myloopylife @WendyG @Nana400 @Tryin2bNorml @KimLangley71 @6b1truck @Colakid3 @Ladyjlb420 @Marinako @Lilsazonepackett @M21montalvo @Menateet72 @Christinem417 @Uniquonne @SherryLup @anniehenderson8 @Frank3 @Jillianchristine @Rosie52 @Mymy0303 @JulieC72

👉 What is one thing you wish more people understood about living with lupus?

👉 Do you feel there are still common misconceptions about SLE that need more awareness?

Your experiences and perspectives could be really valuable to others in the community. 💬

Take care,
Razar from the Carenity team💖