Topic of the discussion
Posted on 7/15/18 11:38 PM
So I am assuming that for most of us, it seems like every day something new happens to our body's or minds from these diseases (no matter which one or the number) or because of illness... I might be a little ok nevermind I am a lot paranoid; in the last 2 weeks I've noticed red bumps coming up mainly on my legs and now on my arms. Some of the itch, or maybe all of them have and i just don't remember. They don't seem to be going away. Has anyone experienced any thing like this?
Because of the sjogren's im used to ulcers in my mouth and soars in my eyes but this is a new thing.
Yes I'm a hypochondriac!!!!
Beginning of the discussion - 7/20/18Is this a new symptom or new issue https://www.carenity.us/forum/lupus/living-with-lupus/is-this-a-new-symptom-or-new-issue-289
Posted on 7/20/18 9:19 PM
It’s not unusual to have more than one autoimmune disease. I have Lupus and MS (and dry eye, vasculitis, and currently a rocesa like rash on my hand that’s been there about three to four weeks). I’m curious about sores in your eyes. I’ve been experiencing a lot of eye symptoms lately. I don’t know if it’s related but I just started participating in a bladder study and I think I have another uti. I just got over one.
Posted on 7/23/18 2:11 AM
I have been in the hospital for two months, with septic phomonia and Lupus sle flare. My kidneys are failing I've had predizone iv and chemotherapy therapy drug added to my meds. But I'm sick and tired of being sick. I have 2 children my girl is 20 my boy is 16. I want to be there to watch them grow. No one can see my challenge s every day ,. How most days I can't move, let alone function. I am fighting this fight alone it puts a toll on my children. I have been fighting this disease off for 10+ years.
Posted on 10/7/18 11:21 AM
I recently got the same really itchy bumps on my skin too! I wake up scratching and most are now small ulcers. ? I've tried Benadryl pills and cream...still pretty bad. Look...i have a lot of problems too, physically and mentally. My mom says she understands, but she doesn't. No one else does for sure because "you don't look sick" When i'm relapsing I do look bad, besides I cantc move and little activity makes me very short of breath. I focus on feeling as best i can... I focus on God...and I focus on loving myself. What anyone else thinks or believes is their problem. Don't make it yours too. Believe what you know is true. Do what the Dr says and take your meds as prescribed.
Blessings to you and much love!
Posted on 10/12/18 5:29 PM
@Heavenbound813 I agree with your advice about “you don’t look sick and having to ignore others judgement. I saw your post about misdiagnosis .. I went through that for years except I kept being told it was stress .. I argued as I had a 6 months low grade fever .. (my normal temp is 96.6 so the 99.5 for me had me dragging, with an occasional spike of 101.5 or maybe higher as the over the counter thermometers don’t work very well ..) I finally fired that primary after I was officially diagnosed with Lupus (two different Rheumatologists as I wanted a second opinion because bad primary said he didn’t believe I had Lupus .. crazy) but I also have MS and Vasculitis and IgM spike and yet they keep trying to look for other things. I’m tired of doctor appointments and testing .. I feel like a guinneau pig ...
Posted on 10/15/18 11:22 PM
OMGosh! I can sooo relate! Actually...im I currently searching for a PCP or Family Care Physician that will take care of my needs and stop seeing Specialists. I'm too tired and too sick of hearing opposing "opinions". I just want to live my days as comfortably and energetically as possible. ( I don't have much of either left in me)
My guinea pig days are over... (I hope, lol)
Posted on 10/23/18 3:00 AM
I recently got the same bumps you described. I get them off and on occasion. I assume just part of a flare up. I use apple cider vinegar on them and that helps me! I just get the Brahms ACV and put it directly on a washcloth and then dab the spots. It’s not a perfect fix, but it helps some. I hope maybe this can help you also!
Posted on 10/23/18 3:11 AM
@Susie41$ how are you? I am alone in this fight too with Lupus. My son is 12 and it is hard on him too and his father, my ex husband just passed away. Hope your home and doing good?