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Infantile Refsum disease Forum

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Medical fact sheet

Infantile Refsum disease

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Living with a rare disease
Living with neurological conditions

 Living with neurological conditions

Do you have a Bucket List?

avatar Foxconway

avatar SicilyNY

avatar Bipolarhelp

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with neurological conditions

Introduction ♡♡

avatar Creader8

avatar Polina.K

 Living with neurological conditions

How do you manage your neuropathic pain?

avatar Morgan101

avatar Stephanie.gay

avatar kiligreen

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with neurological conditions

Head pressure

avatar MasonDavis1

 Living with neurological conditions

Applying for Supplemental Security Income (SSI)

avatar RubyVaughan

avatar MS_283

avatar Hydrocephalus

 Living with neurological conditions

Introduction

 Living with neurological conditions

Motivation

 Living with neurological conditions

Do you have a support animal?

avatar DharmaOkemah

avatar SabinaYetta52

avatar Courtney_J

 Living with neurological conditions

Idiopathic Intercranial Hypertension

avatar Krame36

avatar BeautifulDisaster

avatar PsychoPunch

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How were you diagnosed?

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