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Infantile Refsum disease Forum

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Medical fact sheet

Infantile Refsum disease

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Living with a rare disease
Living with neurological conditions

 Living with neurological conditions

Applying for Supplemental Security Income (SSI)

avatar MS_283

avatar Hydrocephalus

avatar Nala5065

 Living with neurological conditions

Do you have a Bucket List?

avatar Bipolarhelp

avatar Thouston

avatar Shelia1964

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar AlphaBehemonth

avatar Courtney_J

 Living with neurological conditions

Do you have a support animal?

avatar SabinaYetta52

avatar Courtney_J

avatar The_mistics04!

 Living with neurological conditions

How do you manage your neuropathic pain?

avatar Lee__R

avatar madalena

 Living with neurological conditions

Idiopathic Intercranial Hypertension

avatar BeautifulDisaster

avatar PsychoPunch

avatar Lee__R

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Medical research for children under 6 years old

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