Patients Immune thrombocytopenic purpura

Immune thrombocytopenic purpura: What were your first symptoms?

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Courtney_J

Community manager

05/05/2022 at 8:30 AM

Hello everyone,

How are you today? emoticon bashful

What were the first Immune thrombocytopenic purpura symptoms you experienced? Were they what prompted you to seek help?

Don't hesitate to share and discuss with us in the comments below!

Take care,
Courtney

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sophiejane

Edited on 06/23/2022 at 10:00 PM

Hi, it's nice to see that there are forums for people with this strange disease.

In my case, I didn't have any symptoms, it was during a routine bloodwork that I discovered tht my platelet count was low. Several tests and exams later I got my diagnosis

Immune thrombocytopenic purpura: What were your first symptoms? https://www.carenity.us/forum/immune-thrombocytopenic-purpura/living-with-immune-thrombocytopenic-purpura/immune-thrombocytopenic-purpura-what-were-your-first-symptoms-4345 2022-06-23 18:34:02

JacknTan

07/25/2022 at 6:23 AM

I had these small bumps on my skin, its called petekiah (sp?) and I always get a ton of nose bleeds. I didn't find out until much later about ITP, I was shocked when I found out both of those things are related.

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lynbartelt

08/10/2022 at 5:23 AM

@LizziB I have not tried Papaya leaf. The only thing in terms of diet I have found to help is to avoid alcohol and to decrease or avoid refined sugar. My platelets still drop but it seems not as much. My low platelets are due to auto-immune disease. My doctor however says there is nothing in terms of diet that helps. thanks, Lynette

Immune thrombocytopenic purpura: What were your first symptoms?

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