Patients Immune thrombocytopenic purpura

Are nosebleeds normal with Immune Thrombocytopenic Purpura?

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sophiejane

01/10/2023 at 11:39 AM

sophiejane

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Are spontaneous nose bleeds something that I need to be worried about with ITP? I have had some rashes, and a few times passed blood with my urine and had heavy episodes of menstruation but not nosebleeds that have happened quite suddenly. Any information on the same would be appreciated!

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LizziB

01/13/2023 at 2:35 AM

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LizziB

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Hi @sophiejane

How are you today?

Let me tag a few other members who can share their experiences with ITP with you. Perhaps they have has similar symptoms.

@CyndiL @Cgravesrn @Bren196 @Pamcox @lynbartelt @Geeisme @juhachem @Batty22 @gashtabulab1949 @Juliekitchen @UniqlyMe @JacknTan @KateMJ @Mjconley @Cartessa93 @PriyankaMane @Vanessa333 @Ally2010 @Cybele @movebetter @frtcnknk

Do you get nose bleeds? Has your doctor told you they are common? Is there anything you do to reduce their frequency?

Thank you for your input,

Lizzi

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LizziB

Are nosebleeds normal with Immune Thrombocytopenic Purpura? https://www.carenity.us/forum/immune-thrombocytopenic-purpura/living-with-immune-thrombocytopenic-purpura/are-nosebleeds-normal-with-immune-thrombocytop-5091 2023-01-13 02:35:57

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Mjconley

01/13/2023 at 3:01 AM

Mjconley

Last activity on 01/19/2023 at 1:41 PM

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@LizziB @sophiejane I have not had nosebleeds, but have heard that it is a common symptom of ITP; I would message your doctor and try to get in to see them soon especially if that is a new symptom for you. I’m sorry you are dealing with those! My husband gets them and usually pinching his nose helps stop them.

Cartessa93

01/13/2023 at 5:13 AM

Cartessa93

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@LizziB yes I have nosebleeds off an on but only when my platelets drop low

gashtabulab1949

01/13/2023 at 5:45 AM

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@Cartessa93

GloriaB Yes, I suffer with nosebleeds when my platelets drop low and they don't stop unless I rush to the hospital and get help.

gashtabulab1949

01/13/2023 at 5:49 AM

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You have to be careful what supplements you take, such as taking Krill Oil or Fish Oil and Turmeric. These supplements thin your blood.

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Somya.P

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07/29/2026 at 2:03 AM

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Somya.P

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Hi everyone!

I wanted to revisit this discussion because it raises a question that many people living with ITP may have, and newer members might have missed it when it was first posted.

@SueAleman @CyndiL @Cgravesrn @Majaxxz @Bren196 @Pamcox @ReereeBurton @Rebeccalynnis @lynbartelt @Geeisme @shellyntx @Raniasardouk @Lucybuk @Quarry @MD.ShahAlam @Raquelar @gashtabulab1949 @Batty22 @riggulator247 @Annahere @Joeysdad @Juliekitchen @DaizeLynn @KateMJ @Mjconley @Cartessa93 @Vanessa333 @Klzlh2 @PriyankaMane @Cybele @Ally2010 @movebetter @7707795012 @frtcnknk @Jennlrose826 @AliA11 @cupcakevonsprinkle

Have you experienced nosebleeds as your platelet count dropped?
Were they one of the first signs that your ITP was becoming more active, or did they appear alongside other symptoms like bruising or petechiae?
Have you found anything that helps you recognize when it's time to contact your healthcare team?

Every person's experience with ITP can be a little different, so hearing from others may help members feel more prepared to recognize changes and know what questions to ask during their appointments.

Looking forward to hearing your experiences.

Take care,
Somya from the Carenity team 🌼

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Somya from the Carenity team

Are nosebleeds normal with Immune Thrombocytopenic Purpura?

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