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Patients Immune thrombocytopenic purpura
Do other people understand what ITP makes you go through? π
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lynbartelt
@LizziB I have not tried Papaya leaf. The only thing in terms of diet I have found to help is to avoid alcohol and to decrease or avoid refined sugar. My platelets still drop but it seems not as much. My low platelets are due to auto-immune disease. My doctor however says there is nothing in terms of diet that helps. thanks, Lynette
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lynbartelt
@LizziB I have not tried Papaya leaf. The only thing in terms of diet I have found to help is to avoid alcohol and to decrease or avoid refined sugar. My platelets still drop but it seems not as much. My low platelets are due to auto-immune disease. My doctor however says there is nothing in terms of diet that helps. thanks, Lynette
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Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 07/29/2026 at 11:26 PM
Joined in 2023
1,015 comments posted | 3 in the Immune thrombocytopenic purpura Forum
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Hi everyone,
How are you feeling today?
Because immune thrombocytopenia (ITP) is a rare disease, many people have never heard of it. Friends, family, colleagues, and even healthcare professionals may not always understand how unpredictable it can be or how much fatigue, bleeding risks, and uncertainty can affect daily life.
π Do you feel that the people around you understand what it's like to live with ITP?
π Have you ever had to explain your condition or correct misconceptions?
π What would you most like others to know about living with ITP?
@SueAleman @CyndiL @Cgravesrn @Majaxxz @Bren196 @Pamcox @ReereeBurton @Rebeccalynnis @lynbartelt @Geeisme @shellyntx @Raniasardouk @Lucybuk @Quarry @MD.ShahAlam @Raquelar @gashtabulab1949 @Batty22 @riggulator247 @Annahere @Joeysdad @Juliekitchen @DaizeLynn @KateMJ @Mjconley @Cartessa93 @Vanessa333 @Klzlh2 @PriyankaMane @Cybele @Ally2010 @movebetter @7707795012 @frtcnknk @Jennlrose826 @AliA11 @cupcakevonsprinkle
Sharing your experiences can help raise awareness and make others in the community feel less alone.
Take care,
Somya from the Carenity team πΌ