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  5. Living with hepatitis and-or liver diseases
  6. Which liver condition do you have?
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Living with hepatitis and-or liver diseases

Which liver condition do you have?

  •  99 views
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  •  13 comments

avatar Lee__R

Lee__R

Community manager
04/15/2019 at 12:47 AM

Good advisor

There are numerous diseases that affect the liver. Among the most common are:

- Non-alcoholic fatty liver disease
- Cirrhosis of the liver
- Hepatitis (such as A, B, and C)
- Haemochromatosis
- Wilson disease 
- Primary biliary cirrhosis

Which liver disease are you diagnosed with? How long have you been dealing with this condition?

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avatar Tina80

Tina80

04/16/2019 at 1:32 AM

I found out last (fatty liver) Sept, while in the hospital for bowel obstruction. Liver counts have always been strange. No serious communication with Dr about it at all.....she hasn't shown concern.


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2019-04-16 01:32:48

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avatar Pebbles21

Pebbles21

10/15/2023 at 4:07 AM

@Tina80 Hi! I guess I had fatty liver disease a long time ago. I didn't feel bad and was working and active. Fast forward to 2013, my liver Enzymes were really off so they did a biopsy and found I had cirrhosis. Fatty liver disease is reversible and please look into what you can do now to control it. If you look online there are liver cleanses that are really supposed to help. Also stay away from fatty foods, fast food and sugary snacks. That's where I went wrong I didn't take it seriously back then and didn't change my diet. Now I'm going to die of cirrhosis and probably way too young. I was 55 when I was diagnosed. Send me a chat if you want to talk more.


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2023-10-15 04:07:57

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avatar idontdrink

idontdrink

04/16/2019 at 5:30 AM

Good advisor

Hi @Tina80‍ and @Lee__R‍ 

I have been diagnosed with Non-alcoholic fatty liver disease going on three years now.


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2019-04-16 05:30:01

avatar Lee__R

Lee__R

Community manager
04/16/2019 at 5:34 AM

Good advisor

@Tina80 Thank you for sharing. From your response about how the doctor showed no concern and had no serious communication with you, I thought you may also find this discussion interesting, as well as in knowing you are not alone. In this discussion, members are sharing their diagnosis and medical experience with non-alcholic fatty liver disease and many members share a similar experience. Feel free to click the link below to access that discussion also and share your experience and there and communicate with others:  https://member.carenity.ushttps://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547

 

 

 


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2019-04-16 05:34:05

avatar angiebug

angiebug

02/26/2020 at 1:47 AM

I have intrahepatic cholangiocarcinoma I did not see this type of cancer to enter. I was diagnosed March 23, 2019 I have never met anyone with this diagnosis I would really appreciate any help


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2020-02-26 01:47:04

avatar Lee__R

Lee__R

Community manager
02/28/2020 at 4:00 PM

Good advisor

@angiebug Hello angiebug, thank you for your comment. Unfortunately we don't have any information on your condition, as it's pretty rare. For those who don't know, intrahepatic cholangiocarcinoma is a cancer that develops in the cells within the bile ducts and occurs more often in males than females and in individuals over 50.

Feel free to post in this forum to see if there are other members living with the same condition as you. Hopefully you'll find the support you need.

Living with Cancer

Take care,

Lee


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2020-02-28 16:00:30

avatar Horserider

Horserider

10/21/2020 at 6:41 PM

Hello.  I was diagnosed with Hepatitis B in 1993. I was born in 1960 in So. Korea and back then, the conditions were terrible and very unsanitary. I was abandoned by my birth mother so I know nothing about my biological parents. 

Fast forward to the present..... in 2010, I was diagnosed with Crohns and I am on Remicade to keep me in remission. My liver functions remain normal, but I am on Vemlide which keeps me from going in to liver failure as long as I'm on the Remicade.  

I also have cirrhosis of the liver which has caused me to have moderate sized Varocies. So,  now now my GI doctor wants to do an Endoscopy to make sure they haven't grown and if they have, he's going to "band" them,  which is going to be uncomfortable for a couple of days,  but it beats bleeding out.

Many Asian people have Hepatitis B, and in my situation, in a carrier, my antibodies are non reactive. I have a full liver panel a year, but my levels are normal. What irritates me is my doctor doesn't really go over my results, they usually post it and I'll go in to the portal and read it myself. 

Does anyone else have this same issue?

See the signature

Jennifer McCormick


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2020-10-21 18:41:05

avatar JudeA65

JudeA65

01/25/2021 at 6:37 PM

I was diagnosed with Hep C  on my way into Dept. Of Corrections it was like this" you have Hepatitis C an you will land up dying that was it that was back in 1999 I have not gotten any treatment for  my Hep other than bloodwork.  I'm wanting to do a treatment yo cure my Hepatitis  C but lost my insurance an can't afford any at this time make to much for Medicare an not enough to afford any insurance.  Its been a long time having Hepatitis C  an I know if I dont get treatment the answer is I'll pass away from this terrible disease.  I'm so scared to leave my live ones this intesfives my bp depression so now I got to deal with that bp disease it sucks already anyone with same conditions please share how you deal with it all just venting 

See the signature

JJA


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2021-01-25 18:37:23

avatar Pebbles21

Pebbles21

10/15/2023 at 3:53 AM

I have cirrhosis and was diagnosed in 2013, I just realized the other day it's been 10 years! I've been sick since 2004 when I came down with acute pancreatitis. It was awful, I was in the hospital for 3 weeks, 2 in ICU. It's all been downhill since then.


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2023-10-15 03:53:48

avatar Smokymama

Smokymama

10/21/2023 at 3:36 AM

NAFLD dx via ultrasound. High GGT ALP A1C. Symptomatic 1y prior to dx


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2023-10-21 03:36:28

avatar Pebbles21

Pebbles21

10/21/2023 at 11:55 PM

I have cirrhosis and was diagnosed in 2013


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2023-10-21 23:55:16

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avatar Smokymama

Smokymama

10/22/2023 at 6:05 PM

@Pebbles21 how were you diagnosed?


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2023-10-22 18:05:54

avatar Pebbles21

Pebbles21

10/24/2023 at 1:07 AM

@Smokymama they did a liver biopsy


Which liver condition do you have? https://www.carenity.us/forum/other-discussions/living-with-hepatitis-andor-liver-diseases/which-liver-condition-do-you-have-897 2023-10-24 01:07:28

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