Which liver condition do you have?

/static/themes-v3/default/images/default/home/bg-generic.jpg?1516194360

Patients Hepatitis and liver diseases

7 replies

65 views

Topic of the discussion


• Community manager
Posted on

There are numerous diseases that affect the liver. Among the most common are:

- Non-alcoholic fatty liver disease
- Cirrhosis of the liver
- Hepatitis (such as A, B, and C)
- Haemochromatosis
- Wilson disease 
- Primary biliary cirrhosis

Which liver disease are you diagnosed with? How long have you been dealing with this condition?

Beginning of the discussion - 4/16/19

Which liver condition do you have?


Posted on

I found out last (fatty liver) Sept, while in the hospital for bowel obstruction. Liver counts have always been strange. No serious communication with Dr about it at all.....she hasn't shown concern.

Which liver condition do you have?


Posted on

Hi @Tina80‍ and @Lee__R‍ 

I have been diagnosed with Non-alcoholic fatty liver disease going on three years now.

Which liver condition do you have?

• Community manager
Posted on

@Tina80 Thank you for sharing. From your response about how the doctor showed no concern and had no serious communication with you, I thought you may also find this discussion interesting, as well as in knowing you are not alone. In this discussion, members are sharing their diagnosis and medical experience with non-alcholic fatty liver disease and many members share a similar experience. Feel free to click the link below to access that discussion also and share your experience and there and communicate with others:  https://member.carenity.ushttps://www.carenity.us/forum/other-discussions/living-with-nonalcoholic-steatohepatitis/nonalcoholic-fatty-liver-how-was-your-diagnosis-experience-did-you-get-a-plan-of-care-prognosis-547

 

 

 

Which liver condition do you have?


Posted on

I have intrahepatic cholangiocarcinoma I did not see this type of cancer to enter. I was diagnosed March 23, 2019 I have never met anyone with this diagnosis I would really appreciate any help

Which liver condition do you have?

• Community manager
Posted on

@angiebug Hello angiebug, thank you for your comment. Unfortunately we don't have any information on your condition, as it's pretty rare. For those who don't know, intrahepatic cholangiocarcinoma is a cancer that develops in the cells within the bile ducts and occurs more often in males than females and in individuals over 50.

Feel free to post in this forum to see if there are other members living with the same condition as you. Hopefully you'll find the support you need.

Living with Cancer

Take care,

Lee

Which liver condition do you have?


Posted on

Hello.  I was diagnosed with Hepatitis B in 1993. I was born in 1960 in So. Korea and back then, the conditions were terrible and very unsanitary. I was abandoned by my birth mother so I know nothing about my biological parents. 

Fast forward to the present..... in 2010, I was diagnosed with Crohns and I am on Remicade to keep me in remission. My liver functions remain normal, but I am on Vemlide which keeps me from going in to liver failure as long as I'm on the Remicade.  

I also have cirrhosis of the liver which has caused me to have moderate sized Varocies. So,  now now my GI doctor wants to do an Endoscopy to make sure they haven't grown and if they have, he's going to "band" them,  which is going to be uncomfortable for a couple of days,  but it beats bleeding out.

Many Asian people have Hepatitis B, and in my situation, in a carrier, my antibodies are non reactive. I have a full liver panel a year, but my levels are normal. What irritates me is my doctor doesn't really go over my results, they usually post it and I'll go in to the portal and read it myself. 

Does anyone else have this same issue?

Which liver condition do you have?


Posted on

I was diagnosed with Hep C  on my way into Dept. Of Corrections it was like this" you have Hepatitis C an you will land up dying that was it that was back in 1999 I have not gotten any treatment for  my Hep other than bloodwork.  I'm wanting to do a treatment yo cure my Hepatitis  C but lost my insurance an can't afford any at this time make to much for Medicare an not enough to afford any insurance.  Its been a long time having Hepatitis C  an I know if I dont get treatment the answer is I'll pass away from this terrible disease.  I'm so scared to leave my live ones this intesfives my bp depression so now I got to deal with that bp disease it sucks already anyone with same conditions please share how you deal with it all just venting