Familial dysautonomia
Forum

Current topics:

• - Do you have a support animal?
  Hello,  I have depression, anxiety, and epilepsy.  Does anyone have a support animal to calm you down or in this case a trained dog for epilepsy? I've had dogs practically all my life but now my b
• - How can we live with chronic pain?
  My pain is 7 in 10 in the "easiest" days... I have allodynia,so I struggle with everything... I don't know what I can do to have a life more normal... 
• - Severe loneliness
  Here is something to think about. Since the COVID -19 started, how many of you have been overwhelmed with loneliness? Now! Compound that by 59 years, YES! 59 years! During my childhood years, I was ex

Current topics:

• - Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study
  Nearly half of women and one in three men are at risk of developing stroke or degenerative neurological diseases such as dementia and Parkinson's during their lifetime. Dutch researchers consider
• - Study: Air Pollution Linked To Higher Risk Of Dementia
  Alzheimer's Day is this Friday: September, 21 2018If you or a loved one is diagnosed with dementia, join the group and forum here.  Urban air pollution, mostly from vehicles, is associated with an

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos
• - COVID-19: Should we fear a second wave?
  Hello everyone, How are you doing today? As countries throughout the world are and have been coming out of lockdown and life is begining to return to "normal", many people and health authorities ha