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Patients Epilepsy

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Topic of the discussion

Member Carenity • Community manager
Posted on

Regarding your diagnosis and condition with epilepsy:

Have you ever encountered lack of understanding from family? Friends/colleagues? Strangers?

How do you deal with this? What seems to be the most common lack of understanding?

How do you explain epilepsy to others?

Beginning of the discussion - 1/25/19

Have you ever experienced a lack of understanding?
Member Carenity
Posted on

For the most part I feel supported by family and friends and for that I am not only grateful but lucky. However, it is strangers or people unfamiliar with the condition that I usually have to explain the nature of the illness.

I try to inform the people who are with me often, what to do in the event I have a seizure or become unconscious.