Epilepsy: Have you ever been mistreated or discriminated against?

Hi everyone, how are you today?

Living with epilepsy can come with a whole range of challenges, but one that often goes unspoken is the experience of stigma or discrimination. Whether it happens at work, in school, in healthcare, or in social situations, being treated unfairly because of a neurological condition can feel isolating and painful.

Sometimes it’s overt. Other times it’s subtle, like people pulling away, making assumptions, or not including you out of fear or misunderstanding.

• Have you ever felt judged, excluded, or mistreated because of your epilepsy?
• How did you respond in the moment, or afterward?
• What do you wish people better understood about epilepsy and seizures?

@SkylerT @Samuel @Survivor @MrsTomsha @sneezy @Bertah @kat1673 @Lvidana @Amycon40 @Sarah8889 @natishac @Lstrachan1 @Jessica45qt @Mr_Flingz @Pink64 @Lisahunt424 @mariefrankie @freeme @richmay1 @Esined @biddie4203 @adriana_rae @JohnJct34 @deniseb2487 @Mrlee1969 @arlicohe @Emster477 @Dtobryant64 @Rflury @Snoopy58 @Norman64 @bbrooke @Dottietut @CallieMae @xLadyKarma94 @countrypumpkin71 @marytaserjane420 @Wolfwoman @zachlovescaroline216 @freebird @Corinne88 @kaki864 @anglais @Dawgsfan1962 @smkajinsherri41 @CarrieAnnI @Choirgirl @Nella88 @Smokitcat @Nataliettu @Alisons61 @HellenL @drueter21 @KateM1965 @Cholweg

This is a space to speak freely and be heard. Your experience matters and could help others feel less alone 💬

Take care,

Somya from the Carenity team 🌼