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Ehlers-Danlos syndrome Forum

  •  30 members
  •  29 discussions

Medical fact sheet

Ehlers-Danlos syndrome

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Living with a rare disease
Living with conditions affecting the muscles, joints and-or skeleton
Living with skin conditions

 Living with conditions affecting the muscles, joints and-or skeleton

Arthrogryposis: Questions to ask Neurologist?

avatar Somya.P

 Living with skin conditions

What are the best skin creams for rosacea?

avatar Disin223

avatar QueueWhere

avatar Rahul.R

 Living with conditions affecting the muscles, joints and-or skeleton

What natural herbs or supplements have you tried for painful joints?

avatar Frank12

avatar hundal

avatar MichelleStack

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar Dorothyann

 Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

 Living with skin conditions

Psoriasis treatment success!!

avatar Somya.P

 Living with skin conditions

Can I get a massage with a skin condition?

avatar JanetValentin

avatar Shenita

avatar martinez

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with skin conditions

How do you motivate yourself while living with psoriasis

avatar LizziB

 Living with skin conditions

Can you help me diagnose these skin patches?

avatar LizziB

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with skin conditions

Unusual skin allergies/sensitivities: Do you have one?

avatar JoniBlake

avatar EcZena

avatar uncleanatol

 Living with conditions affecting the muscles, joints and-or skeleton

Myofascial pain

avatar Polina.K

avatar Yasha59

avatar smiles12

 Living with skin conditions

How to take care of the skin in winter?

avatar Utatunah

avatar Rahul.R

 Living with skin conditions

Skin rash after a two month of Installing heart stents through cardiac catheterization

avatar LizziB

 Living with skin conditions

How do you treat your atopic dermatitis or eczema? What has worked for you?

avatar gordshelia

avatar EcZena

 Living with skin conditions

Babies with Incontinentia pigmenti, does having a fever it make it worse?

avatar gordshelia

avatar LizziB

 Living with skin conditions

How do you protect your skin in the winter?

avatar Erin0110

avatar gordshelia

avatar John28

 Living with conditions affecting the muscles, joints and-or skeleton

Chronic fatigue syndrome and diet: Does it help?

avatar LizziB

 Living with conditions affecting the muscles, joints and-or skeleton

Getting mobile when you cant move

avatar achy38

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Articles to discover...

Autism and disability:

05/02/2025 | Testimonial

Autism and disability: "At the core of me, there is only light and love."

Ehlers-Danlos Syndrome and POTS: “I recognize the freedom my wheelchair has given me and how it isn't a sign of weakness or failure.

08/14/2024 | Testimonial

Ehlers-Danlos Syndrome and POTS: “I recognize the freedom my wheelchair has given me and how it isn't a sign of weakness or failure."

Fibromyalgia: “I have to stay active!”

10/06/2021 | Testimonial

Fibromyalgia: “I have to stay active!”

Photo testimonial: if Ehlers-Danlos could talk

04/17/2019 | Testimonial

Photo testimonial: if Ehlers-Danlos could talk

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

02/06/2019 | Advice

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

Breast cancer and mastectomy: My story

10/01/2018 | Testimonial

Breast cancer and mastectomy: My story

Why eat local and seasonal food this fall?

10/16/2025 | Nutrition

Why eat local and seasonal food this fall?

Mental health at work: how to recognise the first signs of poor mental health and take care of yourself

10/10/2025 | Advice

Mental health at work: how to recognise the first signs of poor mental health and take care of yourself