Have you experienced nephropathy from your treatment?

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danielleu

05/18/2020 at 9:41 PM

My mom has been undergoing new treatment and her feet are always in pain. The tops of her feet hurt so much and god help you if you even genitally touch a foot. I am on the hunt for socks that will not slip and would be kind to her foot pain. Any ideas guys?

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Courtney_J

Community manager

05/19/2020 at 6:59 PM

@danielleu Hello danielleu, thank you for starting this discussion. I'm sorry your mom is going through that. Let me tag some members who may have also experienced this and can share some advice:

Hello everyone, I hope you're doing well! Have you or anyone you know experienced nephropathy from cancer treatment? Do you have any advice on how to soothe it? Feel free to share here!

@Victoria22‍ @Kev2020‍ @Ncgirl‍ @angelajenrob‍ @pjflyer52‍ @Angela‍ @raerae‍ @yankeerose‍ @Chudso15‍ @Braidcircle1‍ @april50‍ @alspal‍ @Georgie‍ @Losangelesgirl‍ @EmilyRose‍ @hsampson‍ @Mrwhorton53‍ @MR1190‍

Take care,

Courtney

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Courtney_J, Community Manager, Carenity US

Have you experienced nephropathy from your treatment? https://www.carenity.us/forum/cancer/living-with-cancer/nephropathy-1921 2020-05-19 18:59:24

hsampson

Edited on 05/19/2020 at 7:34 PM

Have they checked her iron and ferritin levels (stored iron)? Sometimes that can cause joint pain - not sure about foot pain but my ferritin was super high and I had severe leg pain to where I couldn't sleep. Once we fixed my ferritin levels it went away. Although that was more pain than neuropathy - the neuropathy I had because of low b12. Did they check her b12?

Have you experienced nephropathy from your treatment? https://www.carenity.us/forum/cancer/living-with-cancer/nephropathy-1921 2020-05-19 19:30:00

danielleu

05/21/2020 at 9:09 PM

Yes, it is a side affect of the immuno theropy. She has stopped it because for her it was not working. The pain leaves for some people for that was not the case.😭

Have you experienced nephropathy from your treatment? https://www.carenity.us/forum/cancer/living-with-cancer/nephropathy-1921 2020-05-21 21:09:50

Unregistered member

05/25/2020 at 8:43 PM

I wanted to add one more thing as just a general thought re; Lymphomas. I was sick for quite a Long time before beginning chemo. I really did feel MUCH better after I'd begun. I was so surprised... I've met a few others who had this happen and I'm glad I'm not the only one..