Topic of the discussion
Posted on 4/24/19 9:00 AM
Colon cancer diagnosis was caught early my Oncologist told me, " I'm confident you'll get threw this fine" June 2018. My stomach pain slowly worsened over past month. Cancer spread to my liver so I had surgery to liver to remove tumors on Jan 20, then the end of Feb I went threw 16 Radiation treatments. I was told I had two tiny spots on my liver and that was it. April 16 the I had my MRI to see how my treatments did so I could start chemo and look forward to beating this nightmare for good. Last night the pain in my right side became unbearable so this morning I called my Oncologist to ask if my MRI showed anything that could cause my pain since I hadn't seen my doctor for test results yet. He told me I could have a intestinal blockage to go to ER for possible surgery. St. Joes hospital wanted to do a CAT scan to be sure there was a blockage. After the test the doctor told me " Mrs. Thorning you have no blockage but your so full of tumors that's why your in pain"! So in a short time I went from beating this to having two months to live..I'm 54, I did all I was told, I trusted them all but now I'm going home to die. How did my life change overnight like this? Now no Chemo, no treatment, it's too late... I'm in shock, total disbelief. What did I do to deserve this?
Beginning of the discussion - 4/26/19My life destroyed in 24 hours. It is too late for treatment. https://www.carenity.us/forum/cancer/living-with-cancer/my-life-destroyed-in-24-hours-it-is-too-late-for-treatment-917
Posted on 4/26/19 2:59 AM
@Hidden username I am so sorry to hear this. I am at a loss for words. Was there anything the doctor could have done / should have done differently? Is there not anything they can do going forward? No experimental drugs, etc.?
Maybe get a second opinion... I know you have been through a lot, but just maybe a second opinion offers some other news?? I understand everything is spinning for you... but know at Carenity, the community is here for you.
I wish there was something more I could do besides hope a miracle comes your way quickly!
Posted on 4/30/19 4:01 AM
Thanks for asking but no they diagnosed my cancer wrong. It's a rare type 1 in a million. It's peritioneal carcinomatosis. So they said no cure/treatment ands its spead in all female organs too. Hospice said I could have a few weeks to a couple months
Posted on 4/30/19 5:19 AM
@Hidden username O dear... I am so sorry to read all of this. I too wish there was something more I could say or do. I think anyone would.
I can only hope that you find the strength and courage to live all your days to the fullest and can find joy in the days. Do you have any family near your area? Any things that you can do that you wish you could have done before, but never did? Feel free to contact me at anytime to talk.
Posted on 6/18/19 4:40 AM
@Hidden username I am so sorry to read this. You did absolutey nothing to deserve this and I hope you are not blaming yourself.
I hope you are OK and enjoying every day and making the best of everything - I know it is more easier for me to say to you, than for you to actually do, but after all... it is the best we can do.
I hope you are able to read this and if I can offer any consoling or listening, please do not hesitate to contact me.
Posted on 6/18/19 4:41 AM
@Hidden username I cannot fathom what you must be going through emotionally, mentally, and physically. Please do not hesitate to contact me. Please.
Posted on 6/18/19 6:52 PM
@Hidden username @Hidden username
Thank you very much that means a great deal to me. I'm now under hospice care (that I feel was a mistake) they tell me I dont have much time left but I just dont feel that other from the pain I'm in. I'm fighting bowel obstruction now. I cant eat if nothing comes out. I'm suppose to just let these tumors take over I guess and surrender to them because I have no doctor to even check me and see about surgery to remove some of these tumors to give me some relief or more time because I'm under hospice care. It makes no sense to me so the nurse comes once a week does her little check makes sure I have pain meds and leaves...its just not right. But when hospice takes over you have a prescribing doctor you never meet and you cant be seen by any other medical professionals because insurance won't pay since you have a doctor so you lay, take your meds and wait to die while you suffer while they collect who knows how much from my insurance...its just not fair at all.
Posted on 6/19/19 3:23 AM
@Hidden username I am so glad to hear back from you.
I am so sorry to hear what you are going through. It sounds awful and nothing that a human being should have to deal with... the treatment as if you are not there. Are you able to walk around the facility? Talk to others? Is there anything that helps you be able to see enjoyment, even in the slightest, during the day?
You said going to hospice care you feel was a mistake. If you do not mind me asking, who makes the decision to send you to hospice care?
Posted on 6/21/19 4:08 AM
@Hidden username so sorry to hear Alyce - I hope you can find something to spark joy for you. I can't imagine what you must be feeling and I know you did not do anything to deserve it. no one deserves this. We are here for you for whatever that is worth.
Posted on 7/31/19 5:03 AM
@Hidden username Hi ALyce, how are you? Sending you positive vibes!