Chronic fatigue: patients' experiences and solutions

on Apr 15, 2019

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Fatigue that is both physical and mental

Let's start with an overview of the fatigue experienced by survey respondents.

88% - feel physically tired


73% - feel nervously tired

88% of our members feel physically tired. 73% also reported experiencing nervous and psychological exhaustion. The stress of diagnosis, waiting for each appointment, and the difficult administrative procedures can undermine patients' morale and energy.
On a scale of 1 to 10 (10 corresponding to extreme fatigue), patients rated their fatigue as 7. For them, the party responsible is clear: for 89% of respondents it is the disease; the disease plays a major role in their physical and psychological condition.

Symptoms of the disease are responsible for patient fatigue

We wanted to know more precisely what caused fatigue for those diagnosed with chronic diseases.

   83% - symptoms of the disease

   31% - side effects of treatments

   25% - social pressure

   22% - treatment

Our survey video!

 

The impact of fatigue on patients' daily lives

We wanted to know more precisely how fatigue impacted the daily lives of individuals with chronic diseases. For 98% of patients, fatigue has a strong impact on family and social life.


99% - social life


98% - family life


90% - intimate life


81% - professional life

All aspects of patients' daily lives are affected by chronic fatigue. Some members have even experienced embarrassing or dangerous situations because of their condition, for example, falling asleep at the wheel: "I refuse to go out if it takes more than 20 minutes to drive. One day, I was driving my child back to his internship and I was very, very scared." 

Solutions against chronic fatigue

Patients have tried to implement solutions to fight chronic fatigue. 62% have even discussed it with their general practitioner and 47% with another specialist. Our respondents took charge of their health, even though 42% of them did not benefit from the exchange with the doctor. 59% of the members occasionally or often use sleeping pills. Here are their other solutions:

   50% - more sleep

    30% - do less activities

   27% - energizing supplements and relaxing activities

   22% - a rich diet

What our members expect: more advice and alternative medicines

"In my opinion, health professionals should take this concern into account and possibly suggest elements that relax us and make it easier to fall asleep."

"It's up to me. I have to reduce my activities so that I can spread them out better over the week."

"Doctors should direct us towards alternative medicines or suggest taking supplements, herbal remedies etc.

"If the doctors could explain to me the cause of this fatigue, it would reassure me. Doctors and specialists could better take this fatigue into account and could try to find solutions".

"I don't think there is a solution, fatigue is an integral part of my illness."

"Listening and guidance to an appropriate professional, include in the care path of sophrology, acupuncture..."

"I think I need to better acknowledge my fatigue and actively work at reducing it as well as accept it. As my acceptance plays a large role in getting my head round the idea of working at improving it. Also speaking to someone who could possibly understand my fatigue would really help me."

 

How about you... Are you tired?

What is your solution against fatigue?

Survey of 2,862 Carenity members in France, United Kingdom, Italy, Spain, Germany and the United States in March 2019.

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