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Photo Testimonial: Irritable bowel syndrome prevents people from living

Feb 12, 2019

Photo Testimonial: Irritable bowel syndrome prevents people from living

 

Marie's testimonial
Irritable bowel syndrome prevents people from living

 

irritable bowel syndrome

It has been 5 years now.

After many trips to general practitioners, hospitals and specialists, after hearing repeatedly "it's gastro" from general practitioners or "it's a contagious gastro, stay in the waiting room" at the hospital while I was in the middle of a pain attack, we finally discovered the name of this pain that arises without any warning sign.

Irritable bowel syndrome, also known as "functional colitis", has periods when nothing happens and then, all of a sudden, it's back to seizures that paralyze you, major digestive disorders and cramps. The pain usually occurs during or after a meal. A constant feeling of bloating, a decrease in appetite but also terrible fatigue are associated with it.

These symptoms come to the point where you are afraid to leave home for fear of not feeling well, afraid to do certain things for fear you won't be able to reach a restroom in time. I always have to have painkillers in case of pain attacks but they will only minimize the sensation and not completely eradicate it. On a daily basis, I have to pay attention to everything I eat, everything I do, I try everything to avoid crises and if they happen, to calm them down, but nothing does.

This testimonial is part of the graduation project of Gaëlle Regnier, a student in photography at the Agnès Varda School of Photography and Visual Techniques in Brussels. She chose chronic pain as the theme of this photo report to highlight the patients and their struggle.

 

Other testimonials
Claire: "Continuing to work with rheumatoid arthritis"

Alain: "The labor market excludes the chronically ill"

Delphine: "Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome"

Onrella: "KISS syndrome - from Mother to Son"

Quentin: "Ulcerative colitis won't stop me from travelling"

 

 

avatar Louise-B

Author: Louise-B, Content & Community Manager

Community Manager of Carenity in France, Louise is also editor-in-chief of the Health Magazine to provide articles, videos and testimonials that focus on patients' experiences and making their voices heard. With a multidisciplinary background in journalism, she coordinates the writing of content for the Carenity platforms and facilitates the members' interaction on the site.

Comments

on 2/12/19

Hi members, I thought you would find this testimonial interesting, and perhaps relatable. Feel free to comment, share, and discuss below!

@Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ 

on 2/21/19

Thank you for sharing your story! I enjoyed the read.

on 2/22/19

Thank you for sharing. It is so hard for us with IBD to get a proper diagnosis; for me, I was often dismissed too

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