«
»

Top

Photo testimonial: KISS syndrome - from Mother to Son

Mar 5, 2019

Photo testimonial: KISS syndrome - from Mother to Son

 

Ornella's testimonial
KISS syndrome, from mother to son

 

témoignage syndrome kiss

On December 25, 2017, I gave birth to my second wonder, my sweet Abel. From birth, complications began. Breastfeeding difficulties, regurgitation, colic, intense and incessant crying... nothing unusual, you may say to me, with a newborn baby! That's exactly what the medical professionals thought too, and yet my maternal instinct told me that something was wrong (with my child).

"My son has the diagnosis of KISS syndrome"

After considering and almost immediately dismissing a whole series of diagnoses and after consulting a good number of osteopaths, each more qualified than the next, I came across, by "chance", an article about KISS syndrome (acronym of the German name that I will spare you). And then it was a revelation, my son presented the complete clinical picture!
It is a syndrome that is not very well known in our country and can be solved with a few osteopathic manipulations, if it is treated early enough. After having taken my information, only one osteopath knows and treats this syndrome in Belgium, where I live. I then made the appointment! On the day, the diagnosis was then given... KISS syndrome was confirmed; then a manipulation and a rebirth... on way to getting cured! I became in contact with groups of parents whose children have KISS syndrome, I was getting more and more information and I discovered that this syndrome also commonly affects the parents, often the mothers. At that moment, doubt set in. What if all my little ailments, whose causes have never been found (and it's not for lack of having looked!) were actually related?

"The diagnosis is confirmed for me too"

At the next session, I discussed my symptoms with my son's osteopath. He performed an examination of me and then gave me the same diagnosis. I felt so relieved, not only by the manipulation but also by having found the culprit for all the issues I had for 32 years. No, I'm was not crazy, weak or a hypochondriac! My chronic migraines, scoliosis, orthopedic problems, stiffness, balance problems and chronic fatigue, was all because of KISS syndrome! Since that diagnosis, quite honestly, my life has changed. Given my late diagnosis, a cure is not expected for me, but my quarterly appointment with my beloved osteopath is a huge relief. Unfortunately, the manipulation usually does not last more than two months. Then the stiffness resumes, so do the migraines, but they are luckily less intense than before.

This testimonial is part of the graduation project of Gaëlle Regnier, a student in photography at the Agnès Varda School of Photography and Visual Techniques in Brussels. She chose chronic pain as the theme of this photo report to highlight the patients and their struggle.

 

Other testimonials
Claire: "Continuing to work with rheumatoid arthritis"

Alain: "The labor market excludes the chronically ill"

Delphine: "Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome"

Marie: "Irritable bowel syndrome prevents people from living"

Quentin: "Ulcerative colitis won't stop me from travelling"

 

 

avatar Louise-B

Author: Louise-B, Content & Community Manager

Community Manager of Carenity in France, Louise is also editor-in-chief of the Health Magazine to provide articles, videos and testimonials that focus on patients' experiences and making their voices heard. With a multidisciplinary background in journalism, she coordinates the writing of content for the Carenity platforms and facilitates the members' interaction on the site.

Comments

on 3/6/19

@Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ 

Hey everyone, I wanted to bring your attention to this new testimonial of a member's journey in searching for a diagnosis for her child, and ultimately finding her own diagnosis.

Feel free to comment and share your own similar stories.

on 3/18/19

Hello Friends, Excuse Caps, My Fingers Are Swollen. I Have Had Very Bad Pain Today. I Hope You Guys Are Doing Better Than Me!! I Have Pain, Around Below My Neck, Toward My Back. I Do Not Know If Anyone Had This Experience!! I Pray You Did Not And Never Will. Please If Someone Has This Type Of Pain---What Did You Do For It? The Worse Part Is, I Am Alone!!! No One Around, Since Mom Passed Away. I Wish I Had Someone To Put Some Voltarian Cream(It Numbs The Area).

You will also like

Physical therapy, chronic pain and chronic diseases: our expert’s answers

Physical therapy, chronic pain and chronic diseases: our expert’s answers

Read the article
Studies, scientific publications, and innovative projects: Carenity is committed to advocating for patients

Studies, scientific publications, and innovative projects: Carenity is committed to advocating for patients

Read the article
Which medical conditions and medications are contraindicated for ibuprofen?

Which medical conditions and medications are contraindicated for ibuprofen?

Read the article
Medication Reconciliation: a practice to avoid prescriptions errors, in and outside of the hospital

Medication Reconciliation: a practice to avoid prescriptions errors, in and outside of the hospital

Read the article