Back

X-linked cerebral adrenoleukodystrophy Forum

  •  1 member
  •  22 discussions

Medical fact sheet

X-linked cerebral adrenoleukodystrophy

All
Living with a rare disease
Living with neurological conditions

Living with neurological conditions

🧠 Turmeric and the brain: Can curcumin really help with neurological conditions?

avatar Droukure

avatar Begear77

avatar Paiboosun1

Living with neurological conditions

How do you manage your neuropathic pain?

avatar 6094Measaimushan

avatar Shoodeepo88

avatar Caipail814

Living with a rare disease

Do you struggle to get medication for your rare disease?

avatar 6094Measaimushan

avatar Prefoas821

Living with a rare disease

How were you diagnosed with a rare disease?

avatar Vaykochay57

Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

Living with neurological conditions

Do you have a Bucket List?

avatar Nechaidoubrayn9

avatar Niceejosh19

avatar Gloobleck6363

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar Thourin98

avatar 267Floagroasayt

avatar Chaigraigloor5176

Living with neurological conditions

Introduction ♡♡

avatar Wucraisur1783

avatar Polina.K

Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar 267Floagroasayt

Living with neurological conditions

Head pressure

avatar Nopleng8

Living with neurological conditions

Applying for Supplemental Security Income (SSI)

avatar Betouchayl9

avatar Cooshublayng

avatar Courtney_J

Living with neurological conditions

Do you have a support animal?

avatar Braystosouck461

avatar Courtney_J

Living with neurological conditions

Idiopathic Intercranial Hypertension

avatar Thouyuck79

avatar Lee__R

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

Articles to discover...

Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study

10/25/2018 | News

Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study

Study: Air Pollution Linked To Higher Risk Of Dementia

09/21/2018 | News

Study: Air Pollution Linked To Higher Risk Of Dementia

Ehlers-Danlos syndrome and cervical instability: “I’m confined to bed 24 hours a day”

10/22/2026 | Testimonial

Ehlers-Danlos syndrome and cervical instability: “I’m confined to bed 24 hours a day”

Ozempic®, Wegovy® and Mounjaro®: differences in diabetes and weight management

10/19/2026 | News

Ozempic®, Wegovy® and Mounjaro®: differences in diabetes and weight management

Signs of stress and exhaustion: subtle changes your body may be showing

10/15/2026 | News

Signs of stress and exhaustion: subtle changes your body may be showing

Respiratory allergies: understanding symptoms, triggers and treatments

10/14/2026 | News

Respiratory allergies: understanding symptoms, triggers and treatments

“STOP, get some rest”: Goldenpalace’s story of recovery after a psychotic episode

10/14/2026 | Testimonial

“STOP, get some rest”: Goldenpalace’s story of recovery after a psychotic episode

World Mental Health Day: Why Youth Mental Health Deserves Our Attention

10/10/2026 | News

World Mental Health Day: Why Youth Mental Health Deserves Our Attention