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Usher syndrome type 1 Forum

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Medical fact sheet

Usher syndrome type 1

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Living with a rare disease
Living with eye conditions
Living with a hearing impairment

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with a hearing impairment

What is your hearing loss story?

avatar gypsy4859

avatar Polina.K

 Living with eye conditions

Living with an eye condition: What is your diagnosis?

avatar DonLeBlanc

 Living with eye conditions

Eye conditions and daily life: questions, experiences, advice

avatar mdwithms

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