Back

Rhizomelic chondrodysplasia punctata Forum

  •  3 members
  •  14 discussions

Medical fact sheet

Rhizomelic chondrodysplasia punctata

All
Living with a rare disease
Living with conditions affecting the muscles, joints and-or skeleton

Living with conditions affecting the muscles, joints and-or skeleton

Arthrogryposis: Questions to ask Neurologist?

avatar Somya.P

Living with a rare disease

How were you diagnosed with a rare disease?

avatar Dorothyann

Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

Living with conditions affecting the muscles, joints and-or skeleton

What natural herbs or supplements have you tried for painful joints?

avatar Frank12

avatar hundal

avatar MichelleStack

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

Living with conditions affecting the muscles, joints and-or skeleton

Myofascial pain

avatar Polina.K

avatar Yasha59

avatar smiles12

Living with conditions affecting the muscles, joints and-or skeleton

Chronic fatigue syndrome and diet: Does it help?

avatar LizziB

Living with conditions affecting the muscles, joints and-or skeleton

Getting mobile when you cant move

avatar achy38

Living with conditions affecting the muscles, joints and-or skeleton

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

avatar psori!!pt

Give your opinion

Survey

What is it like to be a woman in the healthcare system?

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

Survey

How were you diagnosed?

Articles to discover...

Does cancer change how we experience time?

02/04/2026 | News

Does cancer change how we experience time?

When traumatic memories leave their mark on the body: Understanding the physical effects of trauma

02/02/2026 | News

When traumatic memories leave their mark on the body: Understanding the physical effects of trauma

Nightmares: what do they tell us about our sleep and health?

01/26/2026 | Advice

Nightmares: what do they tell us about our sleep and health?

Vitamin supplements without guidance: Why “more” is not always better

01/24/2026 | Advice

Vitamin supplements without guidance: Why “more” is not always better

Dopamine: What role does it play in motivation, mood, and daily life?

01/10/2026 | News

Dopamine: What role does it play in motivation, mood, and daily life?

Skin burning after corticosteroids: how to recognize and relieve this little-known syndrome?

01/09/2026 | Advice

Skin burning after corticosteroids: how to recognize and relieve this little-known syndrome?

Sleeping pills: A quick fix or a long-term risk for your sleep?

01/02/2026 | Advice

Sleeping pills: A quick fix or a long-term risk for your sleep?

Thank you for being here. Together, we move forward into 2026.

01/01/2026 | News

Thank you for being here. Together, we move forward into 2026.