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Patients Multiple sclerosis
Have you tried Lemtrada for multiple sclerosis?
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Courtney_J
Community managerGood advisor
Hi @xxmyye, thank you for opening this discussion. Let me tag some other members who can possibly share with you.
Hi everyone, for those of you who have been on Lemtrada for your MS, can you share your experience? Has it been effective? Have you had any side effects? How often are your infusions?
@Brenda05 @mennisphiad @WILLIAMSJANET @blehn9042 @agorzelsky @anitabekarr @KrapothS @nk2222 @Miamio123 @sammi.ray @emmemm12 @djbehret @Letschat @Jwelden @Rebeccaglenn @HashnMemms @Branden3387
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
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Unregistered member
@Courtney_J Hi, I hope everyone is well! I would also greatly appreciate any insight on Lemtrada!
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WILLIAMSJANET
Hi, I have tried Rebif and Tecfidera. Tecfidera is working for me. I have had no progression for 2 years. It does cause facial flushing, and stomach upset. I take an aspirin for the flushing and I take omeprozole for the stomach upset. I make sure I take the pills twice daily at the correct times.
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J. Will
phyllis
What can you do for stress for MS??
xxmyye
@phyllis deep breathing and meditation
Rjackson
@Courtney_J @Courtney_J I have done Lemtrada, First dose in 2017 second dose 2018. I am now age 63, diagnosed age 40.
Blancagirl
Has anybody tried Ampyra to help with walking? If so what has your experience been? Thank you
LizziB
Community managerGood advisor
Hello everyone,
@xxmyye @WILLIAMSJANET @phyllis @Rjackson @Blancagirl
How are you doing today?
I see that there was a short discussion regarding treatment for MS. I wanted to follow up with this thread and let everyone know about a new feature on Carenity. You can now leave reviews for your current and past medications. https://member.carenity.us/medications
By clicking on this link you can search by condition or by the medication directly. Then follow the prompts to leave your experiences and help other members be more informed.
Take care,
Lizzi from the Carenity team
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LizziB
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xxmyye
Who has taken lemtrada? Is anyone else on this? Are there any side effects or anything I should know about?