What is the most frustrating or difficult aspect of living with ulcerative colitis?

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Lee__R

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05/03/2018 at 2:04 AM

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Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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Hello,

What are your greatest difficulties and daily constraints caused by the disease?

How do you deal with these difficulties and constraints?

What are your tips and advice to others?

Thank you in advance for sharing; don't hesitate to ask questions and ask for advice!

Thank you

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Amethyst2

08/12/2018 at 3:57 PM

Amethyst2

Last activity on 11/27/2024 at 1:30 AM

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1 comment posted | 1 in the Living with ulcerative colitis group

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Constant cramping and pain

What is the most frustrating or difficult aspect of living with ulcerative colitis? https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/your-daily-life-with-ulcerative-colitis-122 2018-08-12 15:57:30

Lee__R

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08/15/2018 at 4:56 PM

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Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,336 comments posted | 10 in the Living with ulcerative colitis group

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Thank you @Amethyst2‍. How do you deal with the constant cramping and pain? Are there any medications or treatments that you take that can help reduce such symptoms?

Courtney_J

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08/13/2020 at 6:09 PM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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Hi everyone,

I thought I would revive this topic so we can share our experiences and advice!

What impact has UC had on your daily life? Have you had to change aspects of your daily life or routine because of it? Has it had an impact on your personal or professional relationships? Do you have any advice on how to cope?
@Jessieg82‍ @Carole‍ @andrewlemayian‍ @feb16sm‍ @garcia_noreen‍ @lilcarol79‍ @NiaImani25‍ @DebbieMiller59‍ @HOMER6750‍ @Chocolate5‍ @Libra76‍ @Cletis75‍ @Brian01971‍ @smcsmc‍ @Sunflower32‍ @Dibando‍

Feel free to share your thoughts here!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

tigersdan

08/14/2020 at 5:25 PM

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Last activity on 08/17/2020 at 12:32 PM

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@Courtney_J I think for me it's really had an impact on my social life. I can't really be spontaneous and I'm always on the lookout for the closest bathroom in case I need it. Most of the time when I get somewhere it's the first thing I'm looking for and I sometimes have to plan my day around it. It's awkward at first but you get used to having to explain to people. And having to explain to people at work was embarassing. I feel like a lot of people like my boss and coworkers and even some friends look at me differently... Does anyone else feel like that?

What is the most frustrating or difficult aspect of living with ulcerative colitis?

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