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Living with Multiple Sclerosis

Being intimate with MS

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looking4

06/03/2020 at 3:54 PM

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looking4

Last activity on 04/15/2023 at 10:43 PM

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19 comments posted | 19 in the Living with Multiple Sclerosis group


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Hi, I hope it's alright to talk about this on here, but I'm really looking for others' advice or thoughts. 

Since my diagnosis years ago I've really struggled with being intimate with my husband. I just don't have the desire, and I don't know if it's from my MS or a side effect of my medications, or both. I'm a bit embarrassed about it and haven't been able to bring it up with my neurologist, it's hard enough bringing it up with my husband.

Again I hope it's alright to post this here. I guess I'd like to know if anyone else is going through this, or if it's just me? Is there anything we can do about it? How do we cope?

Thanks in advance.

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07/29/2020 at 8:16 AM

I had never thought about it till I started reading this forum,but when my husband was alive we had what I believed to be a normal sex life until i came down with MS.  I was in and out of hospitals and rehab for 6 months and by the time I got to go home sex was the farthest thing from my mind. When we finally got time together I know I wasn't as enthused as I remember being and Really could have cared less if it ever happened again.  My husband passed away in 2001 and I became celebate. I didn't even think about another relationship till almost 20 years later and I had no problems with my feelings  then,  but in the interim I had quit taking most of my MS meds like copaxone, baclofen, and Ampyra.  When I had been off my meds I found my desires for sex increased.  So,for me, I would say it was the drugs effecting my libido 


Being intimate with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-intimacy-2015 2020-07-29 08:16:53

avatar Psaraven

Psaraven

08/05/2020 at 11:32 PM

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Psaraven

Last activity on 05/08/2022 at 3:08 AM

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I have issues too.  I can not get hard enough.  MS is tearing me up.  Sorry ya'll also have issues.  I have issues telling my wife. But she has been helpful.  Your idea of cuddling your husband is a great idea. You all are not alone. 


Being intimate with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-intimacy-2015 2020-08-05 23:32:17

avatar Shithead

Shithead

08/17/2020 at 10:22 AM

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Last activity on 07/11/2022 at 5:29 PM

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Bite me.....Life Sucks!🤪


Being intimate with MS https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/ms-and-intimacy-2015 2020-08-17 10:22:22
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