Logo Carenity
Logo Carenity
Join now! Log in
flag us
flag fr flag en flag es flag de flag it
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Conditions

Fact sheets
See all - Disease index from A to Z

About

About us
Why share your data?
The Carenity team
The ambassadors
Partner associations
Contributors
The Science and Ethics Committee
Our scientific publications
Our commitments
Certifications and awards
Carenity in the news
Editorial policy
Code of conduct and privacy policy
Legal notice
Terms of use
Cookie management
Contact
Carenity for professionals

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Home
  • Forums
  • General forums
  • Living with lymphoma
  • What is your lymphoma diagnosis story? Let's share!
 Back
Living with lymphoma

What is your lymphoma diagnosis story? Let's share!

  •  25 views
  •  1 support
  •  3 comments

avatar Courtney_J

Courtney_J

Community manager
07/16/2020 at 4:44 PM

Good advisor

avatar Courtney_J

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020


1,339 comments posted | 6 in the Living with lymphoma group

6 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Hello everyone, 

How are you today? emoticon cute

I thought I would create this discussion so we can all get to know one another better!

So, what is your lymphoma diagnosis story? Do you have Hodgkin's or non-Hodgkin's lymphoma? When and how were you diagnosed? What symptoms were you having that let you know something was wrong? What treatments have you undergone? How are you doing today? 
@Hind97‍ @moshiro‍ @Jacobrock25‍ @Cposter63‍ @Nitahiggins‍ @Tuesday112‍ @Byrd1965‍ @Jesusag85‍ @Alice_89‍ @Michelle413‍ @Sammygirl‍ @Brenton1992‍ @Jtinkshell‍ @Char26‍ @thepatientstory‍ @Gary'sgirl‍ @Christopher‍

Feel free to share your story with us here!

And if you haven't seen it already, @Driggs09‍ just recently shared his story with us in a testimonial! You can read it here: Hodgkin's Lymphoma: Staying Active and Positive Through Treatment

Take care,
Courtney

Follow

Other groups...

Carenity News
Feedback for Carenity
Fun and games
General Topics
Good to know
Health and Medical News
How to use Carenity
Let's talk about COVID-19
Life beyond illness
The Holiday Season
Youth patients with chronic conditions

Give your opinion

Survey

Living with obesity: Do you feel supported in your care and treatment?

Survey

Living with obesity: Do you feel supported in your care and treatment?

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

All comments

avatar suzie1

suzie1

07/16/2020 at 6:27 PM

avatar suzie1

suzie1

Last activity on 01/02/2023 at 2:14 PM

Joined in 2019


13 comments posted | 7 in the Living with lymphoma group


Rewards

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

@Courtney_J Hi, I was diagnosed with diffuse large B-cell lymphoma (DLBCL) about a year ago. I was having really bad night sweats and some pressure in my chest, and then I noticed a lump in my armpit. I went through about a million tests it felt like and they found it had spread. I went through a few rounds of R-CHOP (a lovely mix of chemo drugs) and today I'm in remission!


What is your lymphoma diagnosis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-lymphoma/what-is-your-lymphoma-diagnosis-story-lets-share-2223 2020-07-16 18:27:07

avatar TinaLymph

TinaLymph

09/15/2021 at 11:29 PM

avatar TinaLymph

TinaLymph

Last activity on 09/15/2021 at 11:24 PM

Joined in 2021


3 comments posted | 3 in the Living with lymphoma group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

I was diagnosed with non-hodgkin's follicular lymphoma in March this year, completely by accident, after a referral for stomach in January.

I don't really have symptoms, so it was a total shock when they told me that they saw enlarged lymph nodes on the CT scan and that I needed an urgent biopsy. The biopsy came back with stage 3A NHFL. I was and still shocked. In the day-to-day I don't really have any symptoms at all other than feeling more tired that usual and night sweats. I'm not in treatment because it's a slow-growing cancer so we're just watching to see how/if it develops.


What is your lymphoma diagnosis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-lymphoma/what-is-your-lymphoma-diagnosis-story-lets-share-2223 2021-09-15 23:29:20

avatar AuntieDebba

AuntieDebba

06/30/2022 at 4:41 PM

avatar AuntieDebba

AuntieDebba

Last activity on 07/10/2022 at 5:00 AM

Joined in 2022


3 comments posted | 3 in the Living with lymphoma group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

Early 2020 I noticed a bruise look on my forehead. No pain. I woke up and my tight eye wouldn't open. Had biopsy results positive for non Hodgkin's follicular lymphoma. Did 6 Chemo treatments and followed up with many radiation treatments two times per day for 5 days.. I believe 3 weeks of that. The day they said it was gone I had another one show on my left side of the neck and then another a couple days later on the right side. This time they started with the radiation once a day for many weeks 5 days per week and am now going through another chemo series of 6 treatments. My doctor says it is now aggressive

See the signature

Deborah Rock


What is your lymphoma diagnosis story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-lymphoma/what-is-your-lymphoma-diagnosis-story-lets-share-2223 2022-06-30 16:41:10

Give your opinion

Survey

Living with obesity: Do you feel supported in your care and treatment?

Survey

Living with obesity: Do you feel supported in your care and treatment?

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Articles to discover...

The immune system: Your body's first line of defence and the science behind it

06/20/2026 | News

The immune system: Your body's first line of defence and the science behind it

Why spring changes your mood, energy, and body more than you think

05/23/2026 | News

Why spring changes your mood, energy, and body more than you think

Between promise and reality: can omega-7 improve metabolic health?

04/18/2026 | Nutrition

Between promise and reality: can omega-7 improve metabolic health?

Living a healthy life with a chronic illness: is that really possible?

04/07/2026 | News

Living a healthy life with a chronic illness: is that really possible?

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

02/20/2019 | Advice

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

Telemedicine: Remote examinations and operations are here!

03/11/2019 | News

Telemedicine: Remote examinations and operations are here!

Chronic fatigue: patients' experiences and solutions

04/15/2019 | Advice

Chronic fatigue: patients' experiences and solutions

Love life in the face of illness: how to cope?

02/14/2019 | Advice

Love life in the face of illness: how to cope?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

You have been subscribed

Join now! Log in

About

  • About us
  • Why share your data?
  • The Carenity team
  • The ambassadors
  • Partner associations
  • Contributors
  • The Science and Ethics Committee
  • Our scientific publications
  • Our commitments
  • Certifications and awards
  • Carenity in the news
  • Editorial policy
  • Code of conduct
  • Legal notice
  • Terms of use
  • Cookie management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag en flag de flag es flag it

The www.carenity.us website does not constitute or replace professional medical advice.