COVID-19 and Lupus: How is the pandemic impacting your lupus?

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Courtney_J

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03/24/2020 at 4:14 PM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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The coronavirus pandemic has spread very rapidly and some strict new measures have been taken in recent days by state and federal governments. Covid-19 affects everyone, regardless of age or background. But as we know, not everyone reacts in the same way to this virus.

The purpose of this discussion is therefore to allow you to discuss the virus in the context of Lupus in particular.

Have you had any specific recommendations from your doctor regarding your treatment? Have you taken any particular precautions?

Finally, how are you handling social distancing? How do you spend your days?

If you haven't already done so, feel free to consult the latest article in our Health Magazine which deals with the Coronavirus and chronic diseases.

Take care,

Courtney

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9237Meysayve

04/15/2020 at 3:05 PM

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9237Meysayve

Last activity on 11/16/2023 at 1:34 AM

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Hey everyone, I hope you're all doing ok. I'm hanging in here at home. Have any of you had problems getting your Plaquenil prescription like in the article? Thank goodness I got a refill last month before all of this got crazy, but I'm a little worried for the next one... Hopefully there won't be a shortage...

COVID-19 and Lupus: How is the pandemic impacting your lupus? https://www.carenity.us/forum/other-discussions/living-with-lupus/coronavirus-and-lupus-how-are-you-responding-to-the-pandemic-1705 2020-04-15 15:05:06

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04/16/2020 at 8:06 PM

Since I'm not due for a refill yet. I'm hoping it won't be an issue for me. Since I've been out of isolation I've been having trouble with my stomach cramping. Either I'm constipated or having diarrhea. My body feels different.

Joafoapeyr2

04/17/2020 at 7:37 PM

Joafoapeyr2

Last activity on 04/30/2020 at 4:15 PM

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@Prefoas821 yea I was suppose to get my refill and my pharmacy didn’t have it. My doctor told me to call other pharmacies to see if they have any and she’ll send it there.

Stayfroutheal1397

04/17/2020 at 10:04 PM

Stayfroutheal1397

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@Prefoas821 I haven't run into issues getting it but i have been told my 30day supply can now only be 14day supply and every 14 days i need a new script. This is super annoying and also stressful. But I do understand why... if they control how much is going out they have more time to make more which will hopefully ensure there is no one is without... I hope I explained that correctly

Tatroucheas4042

04/29/2020 at 5:03 PM

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Tatroucheas4042

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Hi there,

I don't have any issue with my med prescriptions but the social distancing thing is really hard on me. I feel you @Joafoapeyr2‍ I have a lot of anxiety and it's hard to stay alone with me and my thoughts. Usually I'm not going out much but being forced to self isolated is very different. It's like a cage and the outside seems tempting but scary in the same time. Not sure if I make any sense...

Joafoapeyr2

04/30/2020 at 4:17 PM

Joafoapeyr2

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You make a lot of sense because I feel the same way. I’m not alone but the fact that we have to be in the house everyday all day is becoming more frustrating for all of us. I’m scared all the time. With lupus you get all the symptoms that would consider you to have this disease and I’m constantly thinking. I overthink way too much

Courtney_J

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02/03/2021 at 10:10 PM

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Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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1,334 comments posted | 15 in the Living with lupus group

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Hello everyone,

How are you today? emoticon cute

How are you holding up in lockdown? Have you noticed any flares or changes in your lupus? Is it better? Is it worse? Have you heard anything about the vaccine?
@Praysu26‍ @Hidden username‍ @Hidden username‍ @Paroayouck397‍ @Hidden username‍ @Ciwineet4685‍ @Shoosaifleash‍ @Stousteasteyr5‍ @6228Vaithel‍ @Heayoawees8‍ @Cleefrouseang8‍ @Chakur7960‍ @Yoaveyner2‍ @Hidden username‍ @Hidden username‍ @Yeypret4‍ @Hoatrecroudear8‍ @Fleewepeethoon195‍

Feel free to share! We are all here to help each other!

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US

COVID-19 and Lupus: How is the pandemic impacting your lupus?

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