Topic of the discussion
Posted on 9/17/18 9:41 PM
Hi, I have Lyme disease. But I also think I have another autoimmune disease going on. My latest concern is chest pain and a nd a nodule on my lung. The Er doc thinks inflammation. Has anyone had this ? I also have a swollen lymph node in my groin that burns every now and then. It is hard to know if it’s lyme or something else bc it mimics so many other things.
Beginning of the discussion - 9/18/18Lupus? https://www.carenity.us/forum/other-discussions/living-with-infection-inflammation-immune-syst/lupus-464
Posted on 9/18/18 3:30 AM
I have lupus and have chest pains, but no nodules on my lungs. What did your doctor say about the nodule?
Swollen lymph nodes can be signs of other things, like viral infections. Did the doctor investigate that or did you speak with or make an appointment with a specialist?
Do you have any other symptoms, like difficulty breathing and/or pains in the joints, especially the fingers or wrists or toes or ankles?
Posted on 9/18/18 2:25 PM
I have Lyme so yes all of those things. The ER doctor didn’t even tell me I read it in the report. I haven’t been sick with anything besides the Lyme lately. I was having difficulty breathing, chest pains, extreme fatigue, and joint pain, but it is mainly in my knees and back. It could be Lyme but I feel like it is something else too. I contacted several other doctors but nobody has made any apts for me to get it checked out. So it is a waiting game.
Posted on 9/21/18 7:53 PM
I am Trabrien. I was recently diagnosed with SLE Lupus and I wanted to know if the medicine methotrexate was beneficial and how was your experiences taking this chemotherapy pill. My doctor recently prescribed it for me and I start today.
Posted on 9/22/18 12:31 AM
@Trabrienjones82, welcome to carenity. I recommend you creating a new individual post, so that your question is noticeable and thus the other members would be able to address it more efficiently.
This post is one created by @Bmb3288 dedicated to her question, so other members who are browsing the forums and may have an answer to your question will unfortunately not know of your question.
To create your own forum post, you can go to "My Groups" and will see the "Lupus Group," I recommend posting your question in the forum title "Your Opinion on Lupus Treatment" and the forum titled "Living with Infection - Inflammation - Immune system diseases" --> to do so simply click Create a new discussion once inside the forums
If you need any more assistance, please do not hesitate to contact me directly or I can also create a post for you, if you would like.
Posted on 9/22/18 12:39 AM
@Bmb3288 have you contacted a doctor that specializes in lupus?
I know, each condition of lupus and its symptoms are slightly different from each person to the next... but for me the joint pain started in the toes then the hands...
I wish I could be more help. Is there a reason you suspect also lupus? Did you go to the ER because of chest pain?
Posted on 9/22/18 4:59 PM
Yes Er for chest pain. I have Lyme which has all the same symptoms of lupus so it’s often misdiagnosed, but I just wanted to double check we aren’t missing anything.
Posted on 10/1/18 7:34 PM
I do have lupus. My ANA was positive. Sucky part is Lyme treatment and lupus treatment go against the other......
Posted on 10/19/18 10:50 PM
Hi I need advice on whether I should get a second opinion. A couple years ago my lab results came back positive on my ANA. I was negative for lyme. Well my PCP refered me to a rheumatologist who then did no such tests to rule out the lupus but jumped right to checking me for fibromyalgia because of the sensitivity points on my body. Well for two years now I am experiencing the traditional lupus rash on face every now and then that feels hot. Almost like a hot flash. Also I have always had dryness of eyes and excessive skin dryness on scalp and hands and feet and arms and also dryness of unmentionable area( I'm sure you get what I mean when I say that) so dry that it affects the intamacy with my husband. I also always have clumps of hair coming out when i baithe or brush my hair. I have also had my thyroid fully removed back in 2014 so I am also hypothyroid due to no thyroid. So shold I asked to be referred to another rheumatologist and be checked for lupus.