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Living with digestive disorders

Hair Loss

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03/13/2019 at 2:34 AM

Has anyone experienced severe hair loss after their diagnosis? My hair is falling out in the shower and after I brush it, more than ever. It is becoming so thin and lifeless. It is very depressing for me as I am so young and my hair used to be a great feature of mine and made me confident. Not anymore. I feel like these diseases are just stripping me from everything that was once mine. I went to a dermatologist and they said it is basically from malnourishment and stress, so there’s really no treatment until I get my disease and stress under control. Does anyone have any advice or suggestions?  @Lee__R‍ ‍ can you help generate this discussion as it may apply to more than just people with digestive disorders (IBD, celiac, depression, stress, anxiety, major life event, etc.)

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03/19/2019 at 3:20 PM

@jam1394 I hope you are getting better! thank you so much for sharing your story with me and for the advice ❤️


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-03-19 15:20:53
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03/19/2019 at 3:47 PM

@Kristina_M prednisone affects your mood and not your immune system.  As I’m sure your dr has told you, once the month is over you will need to taper off the prednisone.  


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-03-19 15:47:49
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03/19/2019 at 5:44 PM

@Kristina_M thank you.  Also when I was on prednisone last year I was taking about 50 mg a day and I gained about 100lbs in a month and was a very moody individual. I had a lot of adverse side effects to the point where multiple types of doctors are telling me it would be a bad idea for me to take it again. Please make sure you listen to your body and ask to be tapered sooner if you don't like the side effects even if thr doctor says it's normal. 


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-03-19 17:44:08
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03/19/2019 at 5:56 PM

@Steve72 @jam1394 steroids are actually meant to reduce the activity of the immune system! thank you for the advice; I called my doctor and he already thinks I should be tapered off of it due to my severe signs of infection even with the low dose. Yikes!


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-03-19 17:56:04

avatar Lee__R

Lee__R

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03/20/2019 at 2:54 AM

Good advisor

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Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,336 comments posted | 6 in the Living with digestive disorders group

2 of their responses were helpful to members


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@Kristina_M‍ 

I am glad to see you are getting responses from members - thank you to the members who have responded in sharing their experience.

Here are are the links to other discussions about hair loss with other conditions (you can also find these through the search bar above - top left - and typing in the keyword, such as hair loss, and then at the search results page, selecting Discussions)

https://member.carenity.ushttps://www.carenity.us/forum/other-discussions/hair-loss-with-ms/hair-loss-with-ms-454

https://member.carenity.ushttps://www.carenity.us/forum/other-discussions/hair-loss/hair-loss-393

https://member.carenity.ushttps://www.carenity.us/forum/other-discussions/hair-loss-and-lupus/hair-loss-and-lupus-785

https://member.carenity.ushttps://www.carenity.us/forum/other-discussions/side-effects-of-lupus-medications/side-effects-of-lupus-medications-816

Hope these help.


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-03-20 02:54:59
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03/20/2019 at 3:59 PM

@Lee__R thank you so much Lee. You are so helpful throughout this journey.


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-03-20 15:59:34
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03/25/2019 at 5:01 AM

Buy aloe in plant form blend it and mix with any shampoo your hair will come back


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-03-25 05:01:26

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03/29/2019 at 2:25 AM

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Last activity on 01/31/2026 at 3:02 AM

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4 comments posted | 1 in the Living with digestive disorders group


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No hair loss.  Prednisone gave me instant relief but had far to many side affects.  Water Retention, weight gain, aggression, to name a few.  I'm on a third "wonder drug" now and am seeing side affects also.  My case is considered aggressive though that may be why.  I'm gearing up to travel to a specialist in a few weeks.  Hope is back, but that comes with the paranoia too.


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-03-29 02:25:30
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04/02/2019 at 6:25 PM

@memorex thank you for your feedback!


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-04-02 18:25:05

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cbrook24

Edited on 06/18/2019 at 12:50 AM

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Last activity on 01/31/2024 at 2:57 PM

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1 comment posted | 1 in the Living with digestive disorders group


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I experienced hair loss in the first couple of years of being diagnosed with MS. I was told it was due to stress and my medications. After I got off of topamax it got better.


Hair Loss https://www.carenity.us/forum/other-discussions/living-with-digestive-disorders/hair-loss-838 2019-06-18 00:49:22
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