Family, partner, and friends do not understand - feel alone

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Chuflayng592

10/13/2019 at 5:15 AM

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Chuflayng592

Last activity on 02/23/2024 at 12:23 PM

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22 comments posted | 7 in the Living with chronic pain group

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I have fibromyalgia, which causes me to experience pain, which on somedays can be all over my body. I also will get migraines and suffer from intense fatigue.

The friends I used to have do not take much interest in me anymore. Probably because I cancel a lot or just am too tired to do anything after the day is coming to an end. Somedays, I feel like I want to do something, but then end up never doing anything.

My family and some friends say "just deal with it" or "it could be worse." I have also heard "it can't be that bad" or that I am over exaggerating. I have had a difficult time dating also due to this... seems to affect everything.

Thank you for listening and looking forward to hearing from others.

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911Steaploawoush

11/14/2023 at 12:00 AM

911Steaploawoush

Last activity on 08/06/2024 at 12:43 PM

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2 comments posted | 2 in the Living with chronic pain group

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I would like to discuss how to reach and network with people from whom we can choose are own family, one individual at the time.

Family, partner, and friends do not understand - feel alone https://www.carenity.us/forum/other-discussions/living-with-chronic-pain/family-partner-and-friends-do-not-understand-feel-alone-1280 2023-11-14 00:00:39

Brooboang5338

01/04/2024 at 9:34 PM

Brooboang5338

Last activity on 08/08/2025 at 5:30 PM

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7 comments posted | 5 in the Living with chronic pain group

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I'm sorry. I often feel alone and unheard. I don't have fibromyalgia but I do get migraines that can be terrible. I also wish I could do more but I can't. I don't have any answers. I wish I did.

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Rebecca Holzapfel

Fresheyblat93

03/10/2024 at 7:26 PM

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Fresheyblat93

Last activity on 07/23/2025 at 11:53 PM

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43 comments posted | 41 in the Living with chronic pain group

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What you are going through is very real and debilitating. I have been on Lyrica highest dose and 10mg Flexeril 3 times a day is also the highest dose. This is why I am getting a spinal chord stimulator on Thursday. I did a 1 week trial and pain relief was at least 85%. I know I will never be pain free but I feel SCS can help me get some of my life back. Boston Scientific SCS is so good with providing me so much support and I hope procedure goes well as I suspect it will.

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Nancy Caley

295Veeloadun

03/11/2024 at 6:58 PM

295Veeloadun

Last activity on 05/25/2025 at 9:12 PM

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1 comment posted | 1 in the Living with chronic pain group

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I understand. I still work because I have to. I'm exhausted and in pain day and night. I don't have a choice. If I didn't work I would be homeless

6094Measaimushan

05/05/2026 at 9:37 AM

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6094Measaimushan

Last activity on 10/24/2026 at 11:15 AM

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133 comments posted | 3 in the Living with chronic pain group

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Feeling misunderstood by using those closest to you—accomplice, own family, and buddies—is a profound shape of emotional loneliness that regularly feels worse than being bodily alone. This form of isolation takes place owing to an emotional gap, not a physical one, in which you sense unseen or undervalue notwithstanding being surrounded by using human beings

Family, partner, and friends do not understand - feel alone

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