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  • Let's discuss ankylosing spondylitis!
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Living with ankylosing spondylitis

Let's discuss ankylosing spondylitis!

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avatar mark48

mark48

12/19/2018 at 4:11 AM

avatar mark48

mark48

Last activity on 05/13/2022 at 5:01 PM

Joined in 2018


17 comments posted | 14 in the Living with ankylosing spondylitis group


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 I thought we could all gather here to discuss AS. I have read a lot testimonials from other members in the testimonial section and it feels good to realize that I am not alone in AS and not alone in experiencing and struggling with a chronic condition, like AS. 

I know there are more focused topics here on AS, but I would like to open a more general discussion with you all so that we can meet each other and better get to know each other.

I would be happy to discuss my condition with AS with you.

I hope to hear from any of you soon!

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avatar exit

Unregistered member

08/27/2019 at 10:42 PM

Question for any females on here....

right before your period comes, do you feel abnormally worse for those few days before? that just seems to be the theme for me so i was just curious!!

thanks!!


Let's discuss ankylosing spondylitis! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/could-we-discuss-ankylosing-spondylitis-633 2019-08-27 22:42:07

avatar Claracaïl

Claracaïl

09/08/2019 at 9:34 PM

avatar Claracaïl

Claracaïl

Last activity on 08/19/2020 at 7:30 PM

Joined in 2019


1 comment posted | 1 in the Living with ankylosing spondylitis group


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answer to the question for women

the pains are worse actually before and during my period  concerning me

sorry for my English, but I use a translator (I'm french)


Let's discuss ankylosing spondylitis! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/could-we-discuss-ankylosing-spondylitis-633 2019-09-08 21:34:13
avatar exit

Unregistered member

09/17/2019 at 2:25 AM

My son had pain since he was 11 and recently his knees starting turning inward, he was in so much pain he had to use a wheel chair for long walks and when he did walk he had a bad limp.  He randomly started having grand mal seizures at 15, they were really bad.  At one point he was having 15 seizures a day.  He is now 16 and started taking Humira 7 months ago, he now works out and plays basketball, no more limp and so much happier and stronger, no side effects that we have noticed yet.  He is also on a lot of seizure meds and doctors are trying to find a connection between the two.  Has anyone ever had any seizures or know of people with AS and have seizures?

 


Let's discuss ankylosing spondylitis! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/could-we-discuss-ankylosing-spondylitis-633 2019-09-17 02:25:44
avatar exit

Unregistered member

01/20/2020 at 2:29 PM

I always feel excessive joint pain and fatigue around my period. Sometimes it’s worse, other times it’s better. I’ve been using heating pads and extra strength Advil to help.


Let's discuss ankylosing spondylitis! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/could-we-discuss-ankylosing-spondylitis-633 2020-01-20 14:29:07

avatar Lee__R

Lee__R

Community manager
02/26/2020 at 11:11 AM

Good advisor

avatar Lee__R

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018


1,336 comments posted | 26 in the Living with ankylosing spondylitis group

2 of their responses were helpful to members


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Hello everyone,

I thought our latest patient interview with Yvan, someone who's been living with AS for 15 years might be of interest to you. Here's the link if you'd like to take a look: Patient Interview - Yvan

Take care,

Lee


Let's discuss ankylosing spondylitis! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/could-we-discuss-ankylosing-spondylitis-633 2020-02-26 11:11:27

avatar EmilyJP

EmilyJP

08/19/2020 at 4:36 PM

avatar EmilyJP

EmilyJP

Last activity on 11/03/2023 at 1:19 PM

Joined in 2020


11 comments posted | 9 in the Living with ankylosing spondylitis group


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@MeganF @Joanna07 Wow I hadn't really thought of that, but I now that I think of it I always feel worse before my period too! I always feel extra tired and stiff!


Let's discuss ankylosing spondylitis! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/could-we-discuss-ankylosing-spondylitis-633 2020-08-19 16:36:18

avatar FatimaZohra

FatimaZohra

Edited on 06/06/2021 at 10:37 PM

avatar FatimaZohra

FatimaZohra

Last activity on 01/20/2022 at 11:13 PM

Joined in 2021


2 comments posted | 2 in the Living with ankylosing spondylitis group


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My brother suffering from the same disease for more than 6 years but he just got diagnosed with it not even 1 month ago .

 

he has been suffering for more than 6 years and no one could feel him .

 

After reading all your comments I feel guilty because I didn't realize what he was and still living.

 

Now he's taking some medication but his doctor said there is a big probability to persue another injection drug .

 

I hope he get back his health and safety quickly because he still young only 26 years old and wanting to achieve his goals and continue his study as well.

 

please tell us if anyone from you had this disease and now he's totally okay a'd felling much better.


Let's discuss ankylosing spondylitis! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/could-we-discuss-ankylosing-spondylitis-633 2021-06-06 22:34:10

avatar theodoreevans

theodoreevans

Edited on 04/02/2024 at 12:13 PM

avatar theodoreevans

theodoreevans

Last activity on 03/29/2024 at 4:07 AM

Joined in 2023


2 comments posted | 1 in the Living with ankylosing spondylitis group

1 of their responses was helpful to members


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Thank you for sharing information that is so helpful. I haven't been able to think of many questions about this subject [This content has been moderated by an administrator] 


Let's discuss ankylosing spondylitis! https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/could-we-discuss-ankylosing-spondylitis-633 2024-03-29 04:09:30
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