Where did/do you find information about your condition?

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Posted on

Hello everyone!

After your diagnosis was made, where did you go to find information about your condition? Was/Is your doctor your only source of information? Do you prefer patient forums? Certain medical / informational sites? Google?

Let's share our advice so that everyone has access to reliable information!

Have a good day,

Lee

Beginning of the discussion - 4/19/19

Where did/do you find information about your condition?


Posted on

I was initially told that it was all in my head... so I like to say I started my own investigation using Google, Harvard health, and other people's stories of being told they were crazy or faking. My research also helped me find a doctor that really took my concerns as real and eventually diagnosed me with this condition.

Where did/do you find information about your condition?


Posted on

I have multiple sources of information. I don't trust Drs at all and view them as a necessary evil. I get a lot of info from patient forums and by reading articles. Of course there certainly isn't any financial help available to cancer patients. I lost everything I had fighting this disease. All the foundations spend money on is research, there isn't any money for cancer patients, hell no! I lost everything we had in an apartment fire and my family and I are completely homeless. There are no resources whatsoever for people like me. The disease has even taken our dignity.

Where did/do you find information about your condition?


Posted on

First, I got literature at my doctor's office and then I searched the internet.

Where did/do you find information about your condition?


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I knew for a long time I had depression,  but I finally got my diagnosis after a near death experiences and was admitted to a mental hospital which is where I got my Diagnosis.  Afterward I ask the doctor about it a little bit but I googl3d it

Where did/do you find information about your condition?


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I have seasonal depression.  Have taken antidepressants for years.  Life just happens.  Gotta roll with it.  Plus asperger's & OCD.

Where did/do you find information about your condition?


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I have breast cancer that has metastasized.  When I began treatment with my current chemotherapy drug I was given a package of items and information relating to the drug I would be starting.  

Where did/do you find information about your condition?


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I was given info by the drug company at the start of treatment. The RNs also offer it at my infusions. I've also participated in online discussions of the latest treatments and everyone's experience with the disease.

Where did/do you find information about your condition?


Posted on
I do have multiple sources of information. Not all physicians are well prepared and unwilling to admit it. As a result of the interaction between current administration and politization of info from pharma. I am very reluctant to accept info from them. This reluctance extends to Obama care and the lies told then along with todays current misinformation
Where did/do you find information about your condition?


Posted on

@hmcalpine8 

You got that right. It is sad the way money is spent on people who could work and have no physical disabilities let alone wasted on travel, personal expences and programs for the current administration. Shame on them!  There are many of us out-think of all of the people who are in pain or have disabilities that is of no fault of their own. People need help but it is terrible for people like Cancerdad66 (posted at rop).