Where did/do you find information about your condition?
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Hello everyone!
After your diagnosis was made, where did you go to find information about your condition? Was/Is your doctor your only source of information? Do you prefer patient forums? Certain medical / informational sites? Google?
Let's share our advice so that everyone has access to reliable information!
Have a good day,
Lee
Beginning of the discussion - 4/19/19
Where did/do you find information about your condition? https://www.carenity.us/forum/other-discussions/good-to-know/where-diddo-you-find-information-about-your-condition-901I was initially told that it was all in my head... so I like to say I started my own investigation using Google, Harvard health, and other people's stories of being told they were crazy or faking. My research also helped me find a doctor that really took my concerns as real and eventually diagnosed me with this condition.
I have multiple sources of information. I don't trust Drs at all and view them as a necessary evil. I get a lot of info from patient forums and by reading articles. Of course there certainly isn't any financial help available to cancer patients. I lost everything I had fighting this disease. All the foundations spend money on is research, there isn't any money for cancer patients, hell no! I lost everything we had in an apartment fire and my family and I are completely homeless. There are no resources whatsoever for people like me. The disease has even taken our dignity.
First, I got literature at my doctor's office and then I searched the internet.
I knew for a long time I had depression, but I finally got my diagnosis after a near death experiences and was admitted to a mental hospital which is where I got my Diagnosis. Afterward I ask the doctor about it a little bit but I googl3d it
I have seasonal depression. Have taken antidepressants for years. Life just happens. Gotta roll with it. Plus asperger's & OCD.
I have breast cancer that has metastasized. When I began treatment with my current chemotherapy drug I was given a package of items and information relating to the drug I would be starting.
I was given info by the drug company at the start of treatment. The RNs also offer it at my infusions. I've also participated in online discussions of the latest treatments and everyone's experience with the disease.
@hmcalpine8
You got that right. It is sad the way money is spent on people who could work and have no physical disabilities let alone wasted on travel, personal expences and programs for the current administration. Shame on them! There are many of us out-think of all of the people who are in pain or have disabilities that is of no fault of their own. People need help but it is terrible for people like Cancerdad66 (posted at rop).
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