Back

Oculopharyngeal muscular dystrophy Forum

  •  2 members
  •  12 discussions

Medical fact sheet

Oculopharyngeal muscular dystrophy

All
Living with a rare disease
Living with conditions affecting the muscles, joints and-or skeleton

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar Dorothyann

 Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

 Living with conditions affecting the muscles, joints and-or skeleton

What natural herbs or supplements have you tried for painful joints?

avatar Frank12

avatar hundal

avatar MichelleStack

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with conditions affecting the muscles, joints and-or skeleton

Myofascial pain

avatar Polina.K

avatar Yasha59

avatar smiles12

 Living with conditions affecting the muscles, joints and-or skeleton

Chronic fatigue syndrome and diet: Does it help?

avatar LizziB

 Living with conditions affecting the muscles, joints and-or skeleton

Getting mobile when you cant move

avatar achy38

 Living with conditions affecting the muscles, joints and-or skeleton

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

avatar psori!!pt

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

How were you diagnosed?

Articles to discover...

Inflammation and diet: Which foods to avoid and what to eat instead

07/02/2025 | Nutrition

Inflammation and diet: Which foods to avoid and what to eat instead

Screens and the brain: What are the risks of overuse and how can you protect yourself?

06/28/2025 | News

Screens and the brain: What are the risks of overuse and how can you protect yourself?

Women's health: Why is medical research still falling short?

06/21/2025 | News

Women's health: Why is medical research still falling short?

Can you train your brain to feel happier, scientifically?

06/14/2025 | Advice

Can you train your brain to feel happier, scientifically?

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

06/09/2025 | News

Cognitive behavioral therapy (CBT): A way to better live with your thoughts and emotions

Sports and medications: 10 drugs that could harm your athletic performance

05/30/2025 | News

Sports and medications: 10 drugs that could harm your athletic performance

The fear of flare-ups: How to stop waiting for the worst and take back control

05/23/2025 | Advice

The fear of flare-ups: How to stop waiting for the worst and take back control

The identity shift: How to build a life that includes, but isn’t defined by, illness

05/05/2025 | Advice

The identity shift: How to build a life that includes, but isn’t defined by, illness