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Patients Multiple sclerosis
Do you have a caregiver?
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MS_283
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MS_283
Last activity on 11/23/2022 at 9:27 AM
Joined in 2018
57 comments posted | 36 in the Multiple sclerosis Forum
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I have a family member that helps out a lot and I am forever thankful and grateful. I do not pay her because I do not have the funds to even do so. But I do not think she would even take it.
She has greatly helped improve my quality of life and makes things easier for me. She is understandable which helps a lot.
siemprelucha
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siemprelucha
Last activity on 11/30/2023 at 1:55 AM
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46 comments posted | 40 in the Multiple sclerosis Forum
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@Lee__R i do not have a caregiver but i have family and friends that have been supportive of me during this time which helps a lot but at first was sort of embarrassing for me to have to deal with needing the help. once i was able to fully accept my disease and limitations though, i was able to push those thoughts aside and be more transparent with them and allow them to help me without me feeling like a burden.
Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
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1,340 comments posted | 84 in the Multiple sclerosis Forum
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@siemprelucha that is great that you have had family and friends be there for you and give you the support and help you need!
@MS_283 that is great that you have such a friend. What kind of things does your friend help out with?
Courtney_J
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Courtney_J
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Last activity on 08/08/2022 at 11:09 AM
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1,340 comments posted | 96 in the Multiple sclerosis Forum
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Hello everyone,
How are you doing today?
I thought I would come here to revive this older discussion and also to share our new article!
Elise, a student studying to be a special educator, spent a month as a caregiver for a patient living with MS and quadriplegia and shared her experience with us: "As a student, I worked as a carer for a person with MS and quadriplegia during the summer"
Let us know what you think about her experience in the comments below the article!
And what about you? Do you have a caregiver or someone who helps you? If so, what does he or she help you with? If not, is it something you would consider?
@MsTingles @FnJ2020 @Jsanchez @StormyC @Alexis @Traceyceneviva @LostChild @Cassondra.ott @asccurtis @Well0220 @Badgerland @joeiaccarino @nicoleryan @knaughton @platinumputa @Nherrera4611 @richricha51
Feel free to share here!
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
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I'm not needing a caregiver but I do have the wonderful support of my husband who has leukemia. (I wouldn't classify myself as a caregiver for him either, but we show support for each other on a daily basis with a lot of love and encouragement!) :-) I have not been diagnosed with MS but have signed up on Carenity to learn more about it from those who do and what early symptoms they showed, especially those who didn't show lesions on their MRI initially. As far as caregiving, my hat is off to those who help other people out on an ongoing basis because it is not easy to do that at times. You are the true heroes in my book.
richricha51
richricha51
Last activity on 01/15/2022 at 6:26 PM
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3 comments posted | 2 in the Multiple sclerosis Forum
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I don’t have caregiver but once I start medicine depending on how it’s reaction will be I might need one caregiver for myself . I am single and live by myself . I have fear of several things since I discovered having MS in past few months . I may not be able to afford a caregiver as well
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Lee__R
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Lee__R
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Last activity on 04/03/2020 at 5:04 PM
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1,340 comments posted | 84 in the Multiple sclerosis Forum
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Hi everyone,
Just a general question , do you have a caregiver (family member or paid helper)? If yes, what are some of the ways a caregiver has changed/improved your quality of life?
If your caregiver is a family member, has the family member's taking on of caregiver duties affected your relationship?