Patients Multiple sclerosis
Topic of the discussion
Posted on 5/19/19 6:13 PM
Just a general question , do you have a caregiver (family member or paid helper)? If yes, what are some of the ways a caregiver has changed/improved your quality of life?
If your caregiver is a family member, has the family member's taking on of caregiver duties affected your relationship?
Beginning of the discussion - 5/26/19Do you have a caregiver? https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/do-you-have-a-caregiver-1005
Posted on 5/26/19 5:31 PM
I have a family member that helps out a lot and I am forever thankful and grateful. I do not pay her because I do not have the funds to even do so. But I do not think she would even take it.
She has greatly helped improve my quality of life and makes things easier for me. She is understandable which helps a lot.
Posted on 7/1/19 3:04 AM
@Lee__R i do not have a caregiver but i have family and friends that have been supportive of me during this time which helps a lot but at first was sort of embarrassing for me to have to deal with needing the help. once i was able to fully accept my disease and limitations though, i was able to push those thoughts aside and be more transparent with them and allow them to help me without me feeling like a burden.
Posted on 7/23/19 5:49 AM
@siemprelucha that is great that you have had family and friends be there for you and give you the support and help you need!
@MS_283 that is great that you have such a friend. What kind of things does your friend help out with?
Posted on 11/3/20 6:30 PM
How are you doing today?
I thought I would come here to revive this older discussion and also to share our new article!
Elise, a student studying to be a special educator, spent a month as a caregiver for a patient living with MS and quadriplegia and shared her experience with us: "As a student, I worked as a carer for a person with MS and quadriplegia during the summer"
Let us know what you think about her experience in the comments below the article!
And what about you? Do you have a caregiver or someone who helps you? If so, what does he or she help you with? If not, is it something you would consider?
@MsTingles @FnJ2020 @Jsanchez @StormyC @Alexis @Traceyceneviva @LostChild @Cassondra.ott @asccurtis @Well0220 @Badgerland @joeiaccarino @nicoleryan @knaughton @platinumputa @Nherrera4611 @richricha51
Feel free to share here!
Posted on 11/3/20 7:58 PM
I'm not needing a caregiver but I do have the wonderful support of my husband who has leukemia. (I wouldn't classify myself as a caregiver for him either, but we show support for each other on a daily basis with a lot of love and encouragement!) :-) I have not been diagnosed with MS but have signed up on Carenity to learn more about it from those who do and what early symptoms they showed, especially those who didn't show lesions on their MRI initially. As far as caregiving, my hat is off to those who help other people out on an ongoing basis because it is not easy to do that at times. You are the true heroes in my book.
Posted on 11/4/20 2:43 AM
I don’t have caregiver but once I start medicine depending on how it’s reaction will be I might need one caregiver for myself . I am single and live by myself . I have fear of several things since I discovered having MS in past few months . I may not be able to afford a caregiver as well