Your experience with migraine - Let's share!


Patients Migraine

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• Community manager
Posted on

Hello everyone,

How are you today? emoticon cute

I thought I would pop into our group to share our latest article on migraines! Did you know that approximately 40% of the population has experienced a migraine at least once in their lives? In our article we break down the definition of migraine, its causes, symptoms, and prevention! Feel free to give it a read here: Migraine: What is it and how to fight it?

What has your experience with migraine been like? When did you start experiencing them? When were you diagnosed? What treatments have you tried? Do you have any advice to share?

Feel free to introduce yourself and share your story here! We're all here to help and support one another!

Take care,

Beginning of the discussion - 1/14/21

Your experience with migraine - Let's share!

Posted on

@Courtney_J Hi Courtney, it's nice seeing this group revived! I've never officially been "diagnosed" with migraines because I can't seem to get any doctor to take it seriously. When I got out of school I started working as a data analyst, so I spend my day in front of a computer screen. After a few months I started getting the worst migraines going home every night and then eventually they started creeping into my life outside of work. I mostly self treat them with Excedrin and anti-nausea meds. I was also just gifted a pair of blue light glasses for Christmas and they're still new but seem already to have helped!

Your experience with migraine - Let's share!

Posted on

@Courtney_J My "main" chronic illness is fibromyalgia, and it brings me the "gifts" of chronic pain and migraines. I have a lot of tightness in my neck and back and the squeezing feeling kind of goes up my neck to my head (if that makes any sense) and triggers migraines. I never really had them before my diagnosis. I'm on a few different medicines for my fibro, including a painkiller that is supposed to target the migraines along with my tender points. It's not always effective because the migraines still manage to creep through some days.

I don't know that I have any helpful advice for anyone, but I guess I'd say to be like a dog with a bone in getting help for your migraines. Don't let the doctors wave you off. Keep insisting and get them to listen. Your pain is real and important!

Your experience with migraine - Let's share!

Posted on


I suffer from what i call BLACKOUT migraines. At times the light and sound makes my head feel like it will explode and i'm nauseated, but most of the time i cant see at all when i have a migraine. I've learned not to eat chocolate 4 hours before i go to bed or i'll wake up with a pounding sick to my stomach migraine.

Tylonal or any over the counter meds don't touch it. I have to thc the pain away and usually don't take long and i can see again. If i don't use thc my head ache lasts for DAYS instead of just a few hours. Any pain meds the doctor put me on was way to strong for my system. Tylonal even puts me to sleep.

Thank you for listening to my short story.


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