Leber hereditary optic neuropathy
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Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - Eye conditions and daily life: questions, experiences, advice
  Hello everyone, How are you doing? How does your eye condition affect your daily life? Have you had to change aspects of your life or routine because of it? Have you had to give up activities you o