Patients Internal endometriosis
Topic of the discussion
Posted on 3/10/21 5:34 PM
I have endometriosis and I feel like:
1: No one understands what this involves.
2: If they do know, they think it is just slightly painful periods.
I find it very stressful and upsetting to be so misunderstood. Does anyone else feel like this this? Please help
Beginning of the discussion - 3/10/21Do you feel like people truly understand endometriosis? https://www.carenity.us/forum/internal-endometriosis/living-with-endometriosis/do-you-feel-like-people-truly-understand-endom-3143
Posted on 3/10/21 5:58 PM
Hello @endome, thank you for opening this discussion. I'm sorry to hear you're feeling this way, endometriosis, though common, is unfortunately still largely misunderstood.
Can anyone else relate to what @endome has described? Do you feel like people truly understand endometriosis - both doctors and the general public? Have you ever felt misunderstood by your doctors or your family and friends?
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Feel free to share your thoughts here!
Posted on 5/12/21 8:27 PM
@endome Yup, there is SO MUCH education that needs do be done. Why don't we learn about this in sex ed in school? There is not enough education, information, or research being done or share into women's health. I could go on a whole rant about this but I won't. But yes, I agree, I don't feel like people get it or the impact it has.