Patients Internal endometriosis
Topic of the discussion
Posted on 6/22/20 5:47 PM
Hi, I just joined the site and I'm interesting in hearing about others' experience with their doctors.. I went through several doctors before I finally found a specialist who listened to me and diagnosed my endo.
From the beginning my usual gynecologist seemed to think I was exaggerating or making it up and kept telling me that I should just go on a diet and exercise more to make my pain stop.
From talking with a few friends who also have endo it seems like this isn't an uncommon experience... Did any of you also have a hard time convincing your doctor that something was wrong?
Beginning of the discussion - 6/22/20Did your doctor take your endometriosis pain seriously? https://www.carenity.us/forum/internal-endometriosis/living-with-endometriosis/did-your-doctor-take-your-endometriosis-pain-s-2087
Posted on 6/22/20 5:57 PM
@Jujubeans Hello Jujubeans, thank you both for creating this discussion. I'm sorry to hear that you don't feel like you were taken seriously by your doctors. Let me tag some other members who can also weigh in on this topic.
Hi members, I hope you don't mind that I've tagged you. How has your experience been with your doctors? Do you feel that your doctor took you seriously? Did he or she really listen to you? Were you misdiagnosed or diagnosed late because of it? Feel free to share here!
@ShannonMj @quietpoeticsoul3 @JoJo102201 @aconigs @Jordanmommy @Beehoerner @abynelacrys @DivaDenise @kaubrianna @FFerrara @Sparrow @leilaangeni @Gelsys @Multiverse @EmilyRose @Losangelesgirl
Posted on 7/17/20 2:38 PM
I took a long time for me to get a diagnosis tool. My gyno originally thought I had a hormonal imbalance or just a bad period. We switched birth controls several times and she prescribed some higher dose NSAIDS, but it did nothing. Finally after several visits, a really horrible flare and my breaking down in tears in her office trying to describe the pain, she finally referred me to a specialist. I had some trouble getting some people in my family to understand what I was going through as well, they thought I was just being dramatic. It is SO FRUSTRATING not being listened to or taken seriously by doctors.
Posted on 5/12/21 8:43 PM
@Jujubeans I was lucky and my gyno was familiar with endometriosis and had had other patients who had it. So she was willing to do the right exams to get me a diagnosis, but I'm more than aware that this isn't the case for everyone. I think doctors could stand to be better informed and trained in it.