Is fatigue harder to explain than a low platelet count?

Hi everyone 💜

When people hear about immune thrombocytopenia (ITP), the first thing they may think about is a low platelet count, bruising or bleeding.

But living with ITP isn't always something that can be explained by a number on a blood test.

You might have had a day when your platelet count was the first thing everyone asked about, while what you were actually struggling with was the exhaustion of getting through the day.

Maybe you've cancelled plans because you simply didn't have the energy. Or perhaps you've heard, “But you look fine,” when you were feeling anything but fine.

That's something I'd like us to talk about.

💬 For those living with ITP:

• Does fatigue affect your everyday life, and do you feel that other people understand it?
• Do your symptoms always seem to match what your platelet count shows?
• What part of living with ITP do you wish your family, friends or even healthcare team understood better?

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As ITP Awareness Month comes to an end, perhaps awareness shouldn't only be about knowing what ITP is, but also understanding what it can actually be like to live with it.

If you feel comfortable, tell us about your experience. 💜

With care,
Razar from the Carenity team💖