Patients Focal dystonia
Topic of the discussion
Posted on 5/15/19 6:27 PM
We are launching a new survey about patients' experience with Botulinum toxin A injections. Have you used them to treat your cervical dystonia?
What is your experience with this treatment? Don't hesitate to answer the survey and get your voice heard to make medical research advance!
After answering the survey, you can also continue the discussion here!
Beginning of the discussion - 5/28/19Survey and Discussion: Botulinum toxin injections for cervical dystonia https://www.carenity.us/forum/focale-dystonia/treatments-for-focal-dystonia/survey-and-discussion-botulinum-toxin-injections-for-cervical-dystonia-985
Posted on 5/28/19 8:04 AM
Starting my Botox injection’s this Wednesday, hopefully it will help
Posted on 5/29/19 7:36 PM
I just finished the survey. I’ve been getting injections for a very long time. I’m so pleased this is being discussed and studied.
Posted on 7/14/19 7:01 PM
@Donnsi How have the injections worked since starting them? Any noticeable results?
@Chi910 How have the injections improved the symptoms with your condition?
Posted on 7/14/19 7:16 PM
Hello members. Have you had an opportunity to participate in the survey? If not, I encourage you to click here to participate so that you can play an active role in your medical care.
If you have already participated in the survey, or after you do, you can come back here and continue the conversation with other members!
@Slj42 @Dearluly @dystonialisa22 @Gloria6913 @charliet0477 @Nicholson13 @maritootles @rooks71 @Judy747 @GCDavis @ITGuy1 @Foxyfoxm @mtlisa @Raine061 @HeatherRMellott @Phoenix28 @Jdsbruce @2skatermom @Syrina @Armor2 @Janine @creechr @Bevkay @libbistovall @tinah0237 @sherrik @Armor2 @dennisd51 @Ramchan @gottes11 @coco57blue @Elviscd1 @mtlisa @Awatchman @Cat0919
Posted on 7/14/19 7:54 PM
@Lee__R Amazing results for 3 months then must have injections again so ongoing. It changed my life. Are you considering them? I strongly recommend it. Please be sure to find a specialty doctor who know hoe to work with those with cervical Dystonia.
Posted on 7/14/19 10:38 PM
Have a appointment with neuro in November. Fingers crossed it works.
Posted on 7/15/19 1:49 PM
Will be doing the EMG guided Botox injections. This is for the focal hand dystonia I am dealing with. Praying!
Posted on 7/15/19 6:15 PM
I saw the neurologist today, she scheduled my first injections for August 28. I hope it helps.
Posted on 8/5/19 6:47 PM
Well... I had 13 Botox shots in my right forearm last Monday. It's been 6 days since then and the only thing I have is weakness in my right hand and lower arm. Did not relieve the spasms or hand clenching yet. Will keep you up-to-date.