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Emery-Dreifuss muscular dystrophy Forum

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Medical fact sheet

Emery-Dreifuss muscular dystrophy

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Living with a rare disease
Living with conditions affecting the muscles, joints and-or skeleton

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar Cherimillr

avatar TCoffey

avatar AlphaBehemonth

 Living with conditions affecting the muscles, joints and-or skeleton

Myofascial pain

avatar Yasha59

avatar smiles12

 Living with conditions affecting the muscles, joints and-or skeleton

What natural herbs or supplements have you tried for painful joints?

avatar MichelleStack

avatar Wendyh

avatar KeyaraE

 Living with conditions affecting the muscles, joints and-or skeleton

Chronic fatigue syndrome and diet: Does it help?

avatar LookingSad

 Living with conditions affecting the muscles, joints and-or skeleton

Getting mobile when you cant move

avatar Kate5644

 Living with conditions affecting the muscles, joints and-or skeleton

Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome

avatar Lee__R

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