Patients Child Illnesses
Topic of the discussion
Posted on 1/11/19 7:30 AM
We are guardians for a 10 yr old boy with Partial Fetal Alcohol Syndrome. It affects his behavior in many ways and makes life extremely complex for all our family, his teachers, and the friends he makes or wants to make.
Are there others on Carenity who know someone with FAS or FASD who would like to 'talk' with us and perhaps share struggles and joys?
Judy and Mike Burton
Beginning of the discussion - 1/14/19Fetal Alcohol Syndrome or Fetal Alcohol Spectrum Disorder https://www.carenity.us/forum/child-illnesses/parent-of-a-sick-child/fetal-alcohol-syndrome-or-fetal-alcohol-spectr-682
Posted on 1/14/19 4:50 AM
hey Judy and Mike! That is amazing and I commend you on you taking care of this 10-year old boy. I do not know anyone with FAS; however, I do care for a child who has an intellectual disability. The struggles are finding ways to allow him to prosper in the areas he excels at and also do our best to help him continue to grow socially. He is very intelligent in certain areas, such as conceptual (can take something that you would never think can be made into something, and figure out somehow to make it a masterpiece).
The joys are watching him succeed in life and smile! There are so many joys!
Posted on 1/15/19 5:47 PM
I agree that it takes a lot to care for a child who has a chronic condition, and by a lot I do not mean the sense of economically or physically, but which does take its toll... but what I mean that it wears on the soul of a parent to watch their child suffer and struggle.
@mandj67 how severe is the FAS in sense of disabilities, nervous system, muscular system, socially, etc.? Acknowledge those disabilities and do all you can and resource who / what you can to improve those diasbilities... you will continue to find great enjoyment in watching each step or milestone he continues to achieve.