Topic of the discussion
Posted on 1/4/19 10:04 PM
Why does fear have to be so paralyzing? I’ve survived so many unknowns and so much change, yet still, I struggle so much with the fear of what might be, what could be, the struggles I might face.
A paralyzing overwhelming fear.
Beginning of the discussion - 1/6/19Fear https://www.carenity.us/forum/chancroid/living-with-infection-inflammation-immune-syst/fear-666
Posted on 1/6/19 3:19 AM
Fear ........ Just found out lupus is attacking my liver. I’m so scared of my future and the struggles I will have to overcome. Can anyone tell me what to expect ?
Posted on 1/6/19 6:03 AM
Wow! No, I have no words to help.
You are not alone, there may not be people here, but they are out there.
I am thinking of you as you face this terrifying knowledge. Am not facing the same fears, but I know fear. Sometimes it helps to know others lay awake at night with a cold sense of dread and concern about what the future will hold.
We are stronger than we know. We have survived 100% of our worst days and we will keep surviving.
Thinking of you in this difficult time.
Posted on 1/29/19 12:24 AM
@OddOkapi I agree... fear is almost as bad as the pain and crippling conditions I have.
I fear how will I be able to provide for myself in the future if my health continues to go; I also have a very very bad left upper extremity... it has had numerous surgerys and days and days go by and I Am in more and more pain. I ahev so much nerve pain and joint pain, it is unbearable at time.
I get nervous about the future because I find it harder and harder to concentrate and do even simple tasks.
I get nervous and fear my spouse will get tired of my compliants and limitations and leave me... I get scared I could become disabled.... I get fearful I could become homeless... I get fearful that I Can no longer do even small simple tasks, like lifting my cat beause of the pain... not to mention the systemic conditions!
Posted on 1/29/19 12:25 AM
How do you deal with the fear and uncertainity? How do you go on?
I feel in this country since health care is a mess, if something happens and we lose pre-existing condition coverage we all could be homeless and lose everything we worked for! I get scared of that also.
Posted on 2/13/19 1:27 AM
Hey members, this is a good discussion and, thus, I am restarting it. Feel free to jump in the conversation/discussion and share advice and experiences!
@OddOkapi @JudyDill @Susie41$ @staciebennett @Marglen @Plaidcoat @Mobeck @ccmcd3415 @barbara2018 @Trabrienjones82 @Heatherpeart4541 @GLENDA @Follytee @Sassy2b @CarolC @Mom2000 @jieyang-us @Maria1955 @Laurag @fstringfellow @Rosiebella @Regina.warren @zcarris @Vickyjones @vywill @butterflywhisper @runyanam @Bullet @Bmb3288 @Caprice @Donovan1 @VonnyMom @gardenflasher @linda8416
Posted on 2/13/19 4:06 AM
@lupus38 I have fears too!
Having faith in something bigger than myself is what keeps me going.
Posted on 3/5/19 12:46 AM
HELLO, FEAR IS WHAT KEEPS US STRONG!! I guess you guys, forgot me. Well, I am here. Mickey, slowly but surely I am getting back into the chat. I have been a bit sick!! I am far from a remission of my Lupus. I started a support group in my area of California. It is unfortunate, I do not have the energy to keep the responsibility! Can you believe, Over 150 people showed up after a newspaper article, about me and my service dog. The Service Dog retired and passed away. I have had, no communication with all those people!! They attended the meeting but, NOT ONE OF THEM, wanted the task! Maybe they are sick? I want to keep a positive mind set but it is very difficult, to keep a stiff upper lip. I can always attempt to have the newspaper write an human interest story about (SLE) Lupus. I know what will happen, I will receive a huge amount of people to go to the meeting and after the meeting not one response, afterwards. I did that years ago, and that is what happened. I have to take care of myself. Now, I am experiencing a huge flare up of my Lupus.
I did nothing to cause the Flare!! I do not attempt anything, that might make me react on overload. Especially, since my mother is gone. I have a new caregiver and he has been with me now for about 2.5 yrs. I know my mother has been gone for 2.5 yrs. but I REALLY MISS HER. The caregiver & I get along great and I think it is because we are Italian!! Our culture, predicts our personality. I am an overachiever and he attempts to calm me down!! I wonder why I always run on over-kill lol?? I can not help myself, and I was worse when I was younger. I have slowed down and people can not image, what I was like at a younger age. I hold myself down, by attempting to bake and do other things that will keep me in the house. I love to shop, even if it is window shopping(looking and not buying). That is torment because I was always able to buy without a question of money. Now, I do not work anymore and I have to control my spending. That is a very hard Chore for me. I do not wish it on my worse enemy!! So, today I am hanging up my hat here online with those that are reading this post. I am here and I never finished the last 2 chapters of my book. My life with Lupus!! I am searching for a ghost writer. Please I am going to take a nap, KEEP ME IN YOUR PRAYERS!! The research centers came up with a slogan---
"MAYBE SOMEONE YOU KNOW HAS LUPUS"--Now this is a favorite of the Arthritis Foundation!!!! Remember, we will always have a place in the shade!!! (For those people who do not know, Lupus progresses in the Sun & Heat)
I WILL ALWAYS DO WHATEVER IS POSSIBLE TO MAKE SLE AKA SYSTEMIC LUPUS KNOWN, UNTIL THEIR IS A CURE!!!!!!!
Posted on 3/5/19 1:05 AM