Posted on 5/29/20 7:39 PM
I had a hard time talking to family and friends at first too. I think I was just in both total shock and denial I just couldn't talk about it. I finally told them that I just needed them to be "normal" with me and not baby me or act weirdly around me and that really helped. Then I could talk about it with them when I wanted to and I didn't feel like a ticking time bomb with them staring at me or clearly not knowing what to say.
Posted on 6/1/20 10:18 PM
Well I found out a neighbor down the street has her own battle with cancer. I was trying to walk everyday before my surgery - took me 36 minutes to do a mile which is pretty annoying but I didn't have a ton of energy. I walked by her house everyday and one day she pulled me over and said - what's going on? And now I have someone to talk to. You almost have to find someone other than family/friends who understand what cancer is like - and that every journey is different. I have a rare genetic cancer syndrome which means I can get colon cancer, skin cancer, ovarian, brain cancer - lots of scary one. Most of my family is like well you don't have cancer right now so why are you all freaked out? Umm because those are hard to screen for - my ob says we need to take my ovaries out soon - we already took my uterus out. I have to do lifelong screenings every six months and pray the results come back normal. I am young for finding out this syndrome - most people don't find out until they are much older and have gone through at least two cancers so somehow my battle is not as big of a deal from my family's point. Well if they hadn't found it I would be dead in two years so not sure how they don't understand why I freaked out. Doing better now. I had stage 0 endometrial cancer - if we had not found it I would have died from it - they don't screen for that. They did a biopsy and found it. I am 41. And I have to do lifelong preventive surgeries - might have to 3d print body parts soon. Most of the cancers I can get don't always respond to chemo.
Posted on 6/2/20 6:45 AM
@Ariel1124 I went through that when I was diagnosed with breast cancer 7 years ago. My husband of 32 years did not handle it well at all. We ended up divorcing, not just because of his lack of support with the cancer, but for me it was the straw that broke the camel’s back. I hope you and your husband can talk to someone, maybe a social worker where you are being treated for cancer? You shouldn’t have to feel alone in this fight. You husband should be your backbone and leaning post. Maybe talking to someone about this will help him realize that wishing it away, or pretending to be “strong” about it does not help you. Best of luck. This is literally my second post, but from what I have read, there are many kind people out here who will lend an ear and support when you’re feeling alone. Cyber hugs!
Posted on 6/3/20 2:18 AM
Anyone else here dealt with rib fractures? Today I got a bone scan and they said it was rib fractures but my CT was normal? I didn't do anything to irritate them - so confused...
Posted on 6/3/20 4:43 PM
@hsampson Wow thank you for sharing your story, I'm so glad they discovered your syndrome early! How did they diagnose it? I haven't had rib fractures, but maybe someone else on here knows about it
Posted on 6/7/20 7:37 PM
Hi. I am new here and absolutely feel very lonely. I have stage iv lung cancer and anyone close to me which is few don't know what to say to me. Some moments I just want to cry without making anyone feel awkward. I go this Wednesday for my first chemo and immunotherapy treatment. My significant other that I live with is going with me and sometimes I feel like he either knows everything about this cancer or it's him that's going through it. Sorry needed to cry and vent. I don't know what to expect.
Posted on 6/13/20 6:08 PM
@jessiey I had a rib fracture from multiple myeloma. It was how they discovered I had cancer.
Posted on 6/15/20 4:57 AM
@MOJO13 When did you first get your diagnosis? My doctor told me the first year is the most difficult after you first hear the word "cancer". I think it can be tough because my husband at first - was like when are you getting back to normal. And people close to me were telling me not to be anxious - I think they all mean well, but they can't understand. And in my case a lot of people will say "well you don't have cancer right now" - so what is the big deal? I have a rare genetic cancer syndrome which means I get screenings every six months and already had my uterus out because of it - we had wanted one more kid. For me cancer is a lifelong battle but people don't understand the emotional toll. It is ok to be scared and to cry - I have found it helpful to find people going through cancer or have been through it - they understand more the roller coaster of emotions.
Posted on 6/15/20 5:00 AM
@jessiey When they took my uterus out due to pre malignant cancer cells (which they didn't know what stage it was before surgery - would have turned into cancer) - the oncologist sent me to a genetic counselor and we did genetic testing (a lot of cancer runs on my dad's side of the family). They found Lynch Syndrome during the results.
Posted on 6/29/20 9:49 PM
@MaryAnnMcK I had radiation and no one to talk with about breast cancer. It can be very discouraging and I know how you feel.