What is your ADPKD story? Let's share!


Patients Autosomal dominant polycystic kidney disease

1 reply


Topic of the discussion

• Community manager
Posted on

Hello everyone,

How are you today? emoticon cute

I thought I would open this discussion to help us get to know one another in our ADPKD community!

So, what is your ADPKD story? How and when were you diagnosed with autosomal dominant polycystic kidney disease? Did you have any symptoms or complications before you were diagnosed? Have you tried any treatments for it? How are you doing today? 

Feel free to share your story, experiences and advice with us here, we're all here to help one another!

Take care,

Beginning of the discussion - 8/6/20

What is your ADPKD story? Let's share!

Posted on

@Courtney_J Hi, I just joined the site, so sorry if I'm a bit new to this! I was diagnosed about 10 years ago now after having weeks of UTIs and pain in my back and side and chest that ended with a trip to the ER thinking I was having a heart attack! After all the scans and tests they came back with PKD. I had never heard of it, but we think my dad may have had it because he passed of kidney failure many years ago. Right now I'm mostly being treated for my high blood pressure and occasional kidney stones or UTIs. I'm really grateful to have found this group to get to talk to others about it!