What is it really like to live with psoriatic arthritis?

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Patients Autism Spectrum Disorder

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• Community manager
Posted on

Hi Carenity Members,

I am hoping that the community here at Carenity with psoriatic arthritis will use this discussion to post their story/experience and communicate with other members diagnosed with psoriatic arthritis to discuss what life is really like when living it with psoriatic arthritis.

Please post and share story about living with psoriatic arthritis.

Include information that you feel would be important for a newly diagnosed person, family member, or caregiver to know.

The goal is that this discussion turns into a useful part of the forum where new users, current users, family members, and caregivers could come for helpful information regarding what life is like for those living with the condition.

Through a community we are stronger.

Beginning of the discussion - 3/15/19

What is it really like to live with psoriatic arthritis?

• Community manager
Posted on

Hi members, we have created a group dedicated solely psoriatic arthritis.

Please join in on this discussion and begin to share with others with psoriatic arthritis.

@tadhouse1@curtaincall@Twiggi@selano!@psori!!pt@stward@ribston1@Darnell@insaenguihim@hawksofchi@Anthony75002_US‍ 

What is it really like to live with psoriatic arthritis?


Posted on

Hi everyone, I was diagnosed with psoriasis at 10, not too long after chickenpox. Around age 26, I finally got the diagnosis of PSA and that has kind of taken to be the source of my pain and concern. The flare-ups are hell... My whole elbow, hand. knuckles, fingers are stiff and sore. My hips have started to become stiff also.

Life has not been easy... arthritis is not something I would have thought I would have had to deal with in my late twenties and into my thirties. I feel old and useless at times. I want to do active things or help my parents with certain things, and I do try - I try to do it even if it hurts - but it is depressing come to realization that there are things I cannot do!

What is it really like to live with psoriatic arthritis?


Posted on

@psori!!pt Living with PSoriatic Arthritis is tiring and exhausting and, when a flare comes... the exhaustion is just magnified. Biologics can help - though. You have days of intense soreness, exhaustion, and brain fog. The brain fog is somewhat always there, which means there are times where times passes and what feels like was 5 minutes was actually 30 and you have hard time paying attention or engaging in conversations. You will go from up and downs with depression as well. 

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