Back

X-linked lymphoproliferative disease Forum

  •  20 discussions

Medical fact sheet

X-linked lymphoproliferative disease

All
Living with a rare disease
Living with Infection - Inflammation - Immune system diseases

Living with Infection - Inflammation - Immune system diseases

Severe water sensitivities and MCS, nothing feels safe

avatar Somya.P

Living with a rare disease

How were you diagnosed with a rare disease?

avatar Dorothyann

Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

Living with Infection - Inflammation - Immune system diseases

Info You May Not Know - Prescription Prices

avatar GLENDA

avatar 1984survivor!

avatar Lee__R

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

Living with Infection - Inflammation - Immune system diseases

Money Struggles due to treatment

avatar Lee__R

Living with Infection - Inflammation - Immune system diseases

Biotherapy and COVID-19: Has the virus had an impact on your treatment?

avatar Courtney_J

avatar mark48

avatar Tperillo

Living with Infection - Inflammation - Immune system diseases

Coronavirus and immune system and inflammatory diseases - questions, concerns, tips?

avatar Courtney_J

avatar Jamieson

avatar hivver

Living with Infection - Inflammation - Immune system diseases

feeling trapped by the ticking time bomb quality of life with my lupus family tree

avatar Lee__R

avatar lupus38

Living with Infection - Inflammation - Immune system diseases

Fear

avatar mickey

avatar Marglen

avatar Lee__R

Living with Infection - Inflammation - Immune system diseases

Sle lupus, also bad spine with a lot of operations

avatar jasmine1092

Living with Infection - Inflammation - Immune system diseases

"You look so good, how can you be so sick?"

avatar mickey

avatar Lee__R

avatar lupus38

Living with Infection - Inflammation - Immune system diseases

They call Systemic Lupus, "a wold in disguise"

avatar mickey

avatar Lee__R

Living with Infection - Inflammation - Immune system diseases

Do you know how to deal with lupus fatigue and joitn pain

Living with Infection - Inflammation - Immune system diseases

Lupus?

avatar lupus38

avatar Lee__R

Living with Infection - Inflammation - Immune system diseases

Took 18 years to receive a diagnosis !

avatar Heavenbound813

avatar Lee__R

Living with Infection - Inflammation - Immune system diseases

Recommendation rheumatologist

avatar karm!nR

Give your opinion

Survey

New year, new strength… or just trying to hold on?

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

How were you diagnosed?

Articles to discover...

Serotonin: What it does, why it matters, and how to boost it naturally

12/13/2025 | News

Serotonin: What it does, why it matters, and how to boost it naturally

Why do we oversleep and still wake up exhausted?

12/06/2025 | News

Why do we oversleep and still wake up exhausted?

How daily noise disrupts your health, and what you can do about it

11/29/2025 | News

How daily noise disrupts your health, and what you can do about it

Anti-anxiety medications: What are your options and how to use them safely?

11/28/2025 | News

Anti-anxiety medications: What are your options and how to use them safely?

Your favorite color might reveal more about your mood and health than you’d expect!

11/22/2025 | News

Your favorite color might reveal more about your mood and health than you’d expect!

Feeling clumsy, off-balance and disconnected from your body? It could be a sensory issue.

11/07/2025 | News

Feeling clumsy, off-balance and disconnected from your body? It could be a sensory issue.

Living with morphine: Between relief, risks, monitoring, and misconceptions

11/01/2025 | News

Living with morphine: Between relief, risks, monitoring, and misconceptions

Chronic pain and sleep: Why is it so hard to get rest, and what can help?

10/20/2025 | Advice

Chronic pain and sleep: Why is it so hard to get rest, and what can help?