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X-linked lymphoproliferative disease Forum

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Medical fact sheet

X-linked lymphoproliferative disease

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Living with a rare disease
Living with Infection - Inflammation - Immune system diseases

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with Infection - Inflammation - Immune system diseases

Money Struggles due to treatment

avatar LynndMS

avatar Lee__R

 Living with Infection - Inflammation - Immune system diseases

Biotherapy and COVID-19: Has the virus had an impact on your treatment?

avatar Courtney_J

avatar mark48

avatar Tperillo

 Living with Infection - Inflammation - Immune system diseases

Coronavirus and immune system and inflammatory diseases - questions, concerns, tips?

avatar Courtney_J

avatar Harrish0I2

avatar gymloner1

 Living with Infection - Inflammation - Immune system diseases

feeling trapped by the ticking time bomb quality of life with my lupus family tree

avatar TSpence

avatar Lee__R

avatar lupus38

 Living with Infection - Inflammation - Immune system diseases

Fear

avatar mickey

avatar Marglen

avatar Lee__R

 Living with Infection - Inflammation - Immune system diseases

Sle lupus, also bad spine with a lot of operations

avatar rabbit1947

avatar jasmine1092

avatar OddOkapi

 Living with Infection - Inflammation - Immune system diseases

"You look so good, how can you be so sick?"

avatar mickey

avatar Lee__R

avatar lupus38

 Living with Infection - Inflammation - Immune system diseases

They call Systemic Lupus, "a wold in disguise"

avatar mickey

avatar Lee__R

 Living with Infection - Inflammation - Immune system diseases

Do you know how to deal with lupus fatigue and joitn pain

avatar jenniferan

avatar janeee

avatar emmifow

 Living with Infection - Inflammation - Immune system diseases

Lupus?

avatar Vickyjones

avatar lupus38

avatar Lee__R

 Living with Infection - Inflammation - Immune system diseases

Took 18 years to receive a diagnosis !

avatar Heavenbound813

avatar Lee__R

avatar Rosiebella

 Living with Infection - Inflammation - Immune system diseases

Info You May Not Know - Prescription Prices

avatar GLENDA

avatar 1984survivor!

avatar Lee__R

 Living with Infection - Inflammation - Immune system diseases

Recommendation rheumatologist

avatar karm!nR

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