What treatments have you tried for MS? What works for you?

Hello Courtney. How are you doing? I started using Betseron, then my neurologist changed me to Copaxone and now I am using Ocrevus. Thank you and have a great weekend!!

I was just removed from all disease modifying meds due to age and disease progression.

I started on Tecfidera, then Gilenya and now am on Ocrevus. Thanks and Happy Friday!!

I have been taking Gilenya for about 5 years and prior to that, Copaxone. My MRI's have been stable since I've been on Gilenya. However, I have noticed worsening of symptoms in the cognitive sense and just feeling bad at times during the day, for the past year. My doctor recommended the new drug, Kesimpta. Although my MRI didn't reveal anything new, he said there could be activity on the part of the brain that we can't see in an MRI. I have until May, when my appointment is scheduled, to start Kesimpta. If your interested in what Kesimpta is "thought" to do:

Here’s what goes on with relapsing MS: The immune system uses certain cells, like B cells, to help fight infections. These cells can become activated in the lymph nodes—the communication hub for the immune system .But there’s a miscommunication that happens in relapsing MS. Instead of protecting the immune system, these cells mistakenly attack the body’s myelin—the fatty, protective covering of the nerves in the brain and spinal cord. Here’s what KESIMPTA does: Although it’s not known exactly how KESIMPTA works in relapsing MS, it’s thought to travel specifically to the lymph nodes based on the way it’s taken. From there, it’s thought to reduce the number of B cells that are thought to play a role in relapsing MS. This targeted approach to the lymph nodes is thought to limit the impact on other B cells your body needs to maintain immune function. 

Hi Courtney, I've lived with MS for over 35 years. Had Avonex, Betaferon, Copaxone, now Gilenya. Haven't had a relapse for 15 years. I secondary progressive now I presume. Use a wheelchair. I can't tell you what I think works. My opinion is maybe nothing worked, as my disease has slowly progressed and at 58 need care. Still home with my wonderful husband.

Would love some feedback on effectiveness of DMTs like Gilenya at this stage of MS. Thanks

Hi everyone,

How are you doing? 😊

I wanted to bring back this important discussion on the treatments you've tried for multiple sclerosis and what has worked for you. We would love to hear your experiences and insights.

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Have you tried any new treatments or therapies since you last shared?- How have your experiences with MS treatments evolved over time? What advice would you give to someone newly diagnosed with MS about managing their treatment?

Your experiences are invaluable to the community, so please join the conversation and share your journey with us.

Take care,

Somya from the Carenity Team 🌼