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  • Have you tried Lemtrada for multiple sclerosis?
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Treatments for multiple sclerosis

Have you tried Lemtrada for multiple sclerosis?

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  •  8 comments

avatar xxmyye

xxmyye

12/06/2021 at 4:54 PM

avatar xxmyye

xxmyye

Last activity on 01/26/2022 at 11:05 AM

Joined in 2021


6 comments posted | 6 in the Treatments for multiple sclerosis group


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Who has taken lemtrada? Is anyone else on this? Are there any side effects or anything I should know about?

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avatar Courtney_J

Courtney_J

Community manager
12/08/2021 at 3:39 PM

Good advisor

avatar Courtney_J

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020


1,339 comments posted | 96 in the Treatments for multiple sclerosis group

6 of their responses were helpful to members


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Hi @xxmyye‍, thank you for opening this discussion. Let me tag some other members who can possibly share with you.

Hi everyone, for those of you who have been on Lemtrada for your MS, can you share your experience? Has it been effective? Have you had any side effects? How often are your infusions?
@Brenda05‍ @mennisphiad‍ @WILLIAMSJANET‍ @blehn9042‍ @agorzelsky‍ @anitabekarr‍ @KrapothS‍ @nk2222‍ @Miamio123‍ @sammi.ray‍ @emmemm12‍ @djbehret‍ @Letschat‍ @Jwelden‍ @Rebeccaglenn‍ @HashnMemms‍ @Branden3387‍

Take care,
Courtney

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Courtney_J, Community Manager, Carenity US


Have you tried Lemtrada for multiple sclerosis? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-lemtrada-for-multiple-sclerosis-4027 2021-12-08 15:39:06

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avatar exit

Unregistered member

12/27/2022 at 11:35 PM

@Courtney_J Hi, I hope everyone is well! I would also greatly appreciate any insight on Lemtrada!


Have you tried Lemtrada for multiple sclerosis? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-lemtrada-for-multiple-sclerosis-4027 2022-12-27 23:35:28

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avatar WILLIAMSJANET

WILLIAMSJANET

12/08/2021 at 9:16 PM

avatar WILLIAMSJANET

WILLIAMSJANET

Last activity on 06/08/2022 at 5:57 PM

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1 comment posted | 1 in the Treatments for multiple sclerosis group


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Hi, I have tried Rebif and Tecfidera.  Tecfidera is working for me.  I have had no progression for 2 years.  It does cause facial flushing, and stomach upset.  I take an aspirin for the flushing and I take omeprozole for the stomach upset.  I make sure I take the pills twice daily at the correct times.  

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J. Will


Have you tried Lemtrada for multiple sclerosis? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-lemtrada-for-multiple-sclerosis-4027 2021-12-08 21:16:03

avatar phyllis

phyllis

12/10/2021 at 1:44 AM

avatar phyllis

phyllis

Last activity on 12/10/2021 at 1:41 AM

Joined in 2020


4 comments posted | 3 in the Treatments for multiple sclerosis group


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What can you  do for stress for MS??


Have you tried Lemtrada for multiple sclerosis? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-lemtrada-for-multiple-sclerosis-4027 2021-12-10 01:44:38

avatar xxmyye

xxmyye

12/17/2021 at 2:55 PM

avatar xxmyye

xxmyye

Last activity on 01/26/2022 at 11:05 AM

Joined in 2021


6 comments posted | 6 in the Treatments for multiple sclerosis group


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@phyllis‍ deep breathing and meditation


Have you tried Lemtrada for multiple sclerosis? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-lemtrada-for-multiple-sclerosis-4027 2021-12-17 14:55:40

avatar Rjackson

Rjackson

01/03/2022 at 7:08 PM

avatar Rjackson

Rjackson

Last activity on 08/12/2022 at 1:27 AM

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2 comments posted | 2 in the Treatments for multiple sclerosis group


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@Courtney_J @Courtney_J I have done Lemtrada, First dose in 2017 second dose 2018. I am now age 63, diagnosed age 40. 


Have you tried Lemtrada for multiple sclerosis? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-lemtrada-for-multiple-sclerosis-4027 2022-01-03 19:08:59

avatar Blancagirl

Blancagirl

01/24/2022 at 8:57 PM

avatar Blancagirl

Blancagirl

Last activity on 03/02/2025 at 8:22 PM

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2 comments posted | 2 in the Treatments for multiple sclerosis group


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Has anybody tried Ampyra to help with walking? If so what has your experience been? Thank you


Have you tried Lemtrada for multiple sclerosis? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-lemtrada-for-multiple-sclerosis-4027 2022-01-24 20:57:47

avatar LizziB

LizziB

Community manager
03/20/2023 at 6:59 PM

Good advisor

avatar LizziB

LizziB

Community manager

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022


603 comments posted | 35 in the Treatments for multiple sclerosis group

24 of their responses were helpful to members


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Hello everyone,

@xxmyye @WILLIAMSJANET @phyllis @Rjackson @Blancagirl

How are you doing today?

I see that there was a short discussion regarding treatment for MS. I wanted to follow up with this thread and let everyone know about a new feature on Carenity. You can now leave reviews for your current and past medications. https://member.carenity.us/medications

By clicking on this link you can search by condition or by the medication directly. Then follow the prompts to leave your experiences and help other members be more informed.

Take care,

Lizzi from the Carenity team


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LizziB


Have you tried Lemtrada for multiple sclerosis? https://www.carenity.us/forum/other-discussions/your-opinion-on-multiple-sclerosis-treatments/have-you-tried-lemtrada-for-multiple-sclerosis-4027 2023-03-20 18:59:50

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