Logo Carenity
Logo Carenity
Join now! Log in
flag us
flag fr flag en flag es flag de flag it
Home Forum Conditions Magazine Medications Surveys
Join now! Log in
  • Forum
  • Conditions
  • Magazine
  • Medications
  • Surveys
  • Home
  • Forums
  • General forums
  • Good to know
  • How do you advocate for yourself with physicians and other care providers?
 Back
Good to know

How do you advocate for yourself with physicians and other care providers?

  •  74 views
  •  1 support
  •  7 comments

avatar LizziB

LizziB

Community manager
08/23/2023 at 1:37 PM

Good advisor

avatar LizziB

LizziB

Community manager

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022


603 comments posted | 57 in the Good to know group

24 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Hello everyone,

How are you doing today?

We listen to our our doctors' diagnosis and treatment recommendations, after all, they have over a decade of schooling and it is their profession. However, who knows your body better than you? Sometimes you have to fight for more tests, second opinions, or different medication.

How do you stand up for yourself and your body against physicians and care providers?How did you do it? Did you keep your doctor or find new?

Patient advocacy is important. Share your stories about when you stood up for yourself.

Take care,

Lizzi from the Carenity team

Follow

Other groups...

Good to know
Carenity News
Feedback for Carenity
Fun and games
General Topics
Health and Medical News
How to use Carenity
Let's talk about COVID-19
Life beyond illness
The Holiday Season
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

How do you use Carenity? Share your experience!

All comments

avatar LizziB

LizziB

Community manager
Edited on 08/30/2023 at 11:12 AM

Good advisor

avatar LizziB

LizziB

Community manager

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022


603 comments posted | 57 in the Good to know group

24 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

And what about you, how do you advocate for yourself?

@Kimber311 @esobcz01 @MrGjd2023 @Rflury @calmewil @sweetiecakes87 @ConnieS. @thegurns @SuzyQ65 @ChasityHouck @JoinerD @stephencriss @Alexandernelson @Aviapaq @Laurendnyc @Carlyhew @JaredW @Gayhelen @B.miaia @Naespa @Ladonna67 @Olveraangel @Mrspeedy @mrscarone @Jastanley9 @dan.varady @charding8290 @Tescott1981 @chais18a @Country115 @Truint40 @Erica11775 @Dr.WhoPeggygmail.com @NewLeaf @LisaK1962

See the signature

LizziB


How do you advocate for yourself with physicians and other care providers? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-advocate-for-yourself-with-physicia-5450 2023-08-30 11:01:57

Close all 

See the responses 

avatar thegurns

thegurns

Edited on 09/02/2023 at 1:42 AM

avatar thegurns

thegurns

Last activity on 12/31/2024 at 2:45 PM

Joined in 2023


8 comments posted | 1 in the Good to know group

1 of their responses was helpful to members


Rewards

  • Messenger

  • Explorer

  • Friend

  • Newsfeeder


 View profileView  Add a friendAdd  Write

@LizziB I write!

"On the Road to Remission"

https://www.amazon.com/dp/B08QRB3H3G

favicon.ico

Amazon.com: On the Road to Remission: 9798581881767: Guernsey, Keith D, DeCrescenzo, Susan J, Hite, Rozalynn: Books

Amazon.com: On the Road to Remission: 9798581881767: Guernsey, Keith D, DeCrescenzo, Susan J, Hite, Rozalynn: Books

See the signature

Keith Douglas Guernsey


How do you advocate for yourself with physicians and other care providers? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-advocate-for-yourself-with-physicia-5450 2023-08-30 12:59:28

avatar LisaK1962

LisaK1962

08/31/2023 at 12:43 AM

avatar LisaK1962

LisaK1962

Last activity on 09/15/2023 at 12:03 AM

Joined in 2020


6 comments posted | 1 in the Good to know group


Rewards

  • Committed

  • Explorer

  • Evaluator

  • Friend

  • Newsfeeder


 View profileView  Add a friendAdd  Write

@LizziB You Have to advocate for yourself because because no one will advocate for you.

See the signature

Lisa


How do you advocate for yourself with physicians and other care providers? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-advocate-for-yourself-with-physicia-5450 2023-08-31 00:43:45

Hide the responses 

avatar dan.varady

dan.varady

Ambassador
08/30/2023 at 3:08 PM

Good advisor

avatar dan.varady

dan.varady

Ambassador

Last activity on 05/07/2025 at 5:14 PM

Joined in 2020


93 comments posted | 9 in the Good to know group

6 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Committed

  • Explorer

  • Evaluator

  • Friend


 View profileView  Add a friendAdd  Write

I am very fortunate, my brother is in pharmaceutical sales and sent me the information on a treatment that he thought would work to calm my MS. I approached my neurologist with the information, and was his first patient that this infusion was administered to.

See the signature

Dan Varady


How do you advocate for yourself with physicians and other care providers? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-advocate-for-yourself-with-physicia-5450 2023-08-30 15:08:40

avatar esobcz01

esobcz01

08/24/2024 at 3:21 AM

Good advisor

avatar esobcz01

esobcz01

Last activity on 04/30/2025 at 4:15 PM

Joined in 2021


25 comments posted | 6 in the Good to know group

1 of their responses was helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Committed

  • Explorer


 View profileView  Add a friendAdd  Write

I ask questions and I ask them to explain things to me in ways that I can listen. I always take my glucose log with me to my appointments. They are pleased that I have lost weight.

Ed


How do you advocate for yourself with physicians and other care providers? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-advocate-for-yourself-with-physicia-5450 2024-08-24 03:21:02

avatar Rgallagher

Rgallagher

12/10/2024 at 11:06 PM

Good advisor

avatar Rgallagher

Rgallagher

Last activity on 04/16/2025 at 11:12 PM

Joined in 2024


37 comments posted | 16 in the Good to know group

6 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

Omg how many times I've had to return to the office to get them to do what they said they would do. I almost landed in the emergency room because of an uncaring unprofessional PA. I was in full blown aspiration. My lungs were full everyone knows how scary that is. She confirmed and prescribed the usual steroids and antibiotics. It took 4 calls 2 in person visits and 17 days before she finally put the script thru. By then I had gone to tractor supply and bought Calf Scout which is oxytetracycline. I document every call date and time and who I spoke with. The trips to the office and my trip to tractor supply.

The doctor was upset to hear what I was telling him happened. But he knows me and is familiar with my OCD. So when I pulled it out with all that happened he knew I wasn't exaggerating or being fussy.

I am like a dog with a bone now. Keep everything question everything.

See the signature

R Gall


How do you advocate for yourself with physicians and other care providers? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-advocate-for-yourself-with-physicia-5450 2024-12-10 23:06:06

avatar Rgallagher

Rgallagher

12/10/2024 at 11:06 PM

Good advisor

avatar Rgallagher

Rgallagher

Last activity on 04/16/2025 at 11:12 PM

Joined in 2024


37 comments posted | 16 in the Good to know group

6 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

That's Calf Scour

See the signature

R Gall


How do you advocate for yourself with physicians and other care providers? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-advocate-for-yourself-with-physicia-5450 2024-12-10 23:06:59

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

How do you use Carenity? Share your experience!

Articles to discover...

The identity shift: How to build a life that includes, but isn’t defined by, illness

05/05/2025 | Advice

The identity shift: How to build a life that includes, but isn’t defined by, illness

Medications and driving: Are your prescriptions putting you at risk behind the wheel?

04/26/2025 | Advice

Medications and driving: Are your prescriptions putting you at risk behind the wheel?

Can journaling bring real benefits for chronic illness symptoms?

04/25/2025 | Advice

Can journaling bring real benefits for chronic illness symptoms?

Aspartame and its effects on our health

04/19/2025 | Nutrition

Aspartame and its effects on our health

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

02/20/2019 | Advice

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

Telemedicine: Remote examinations and operations are here!

03/11/2019 | News

Telemedicine: Remote examinations and operations are here!

Chronic fatigue: patients' experiences and solutions

04/15/2019 | Advice

Chronic fatigue: patients' experiences and solutions

Love life in the face of illness: how to cope?

02/14/2019 | Advice

Love life in the face of illness: how to cope?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

You have been subscribed

Join now! Log in

About

  • About us
  • The Carenity team
  • The Science and Ethics Committee
  • Contributors
  • Carenity in the news
  • Certifications and awards
  • Data For Good
  • Our scientific publications
  • Discover our studies
  • Editorial policy
  • Code of conduct
  • Our commitments
  • Legal notice
  • Terms of use
  • Cookie management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag en flag de flag es flag it

The www.carenity.us website does not constitute or replace professional medical advice.